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KIF1A.ORG proslijedio/la je Tweet

@ChanZuckerberg announces $13.5M in funding to patient-led groups to drive research for#RareDisease forward https://czi.co/2Uk7EJg pic.twitter.com/fzepdXVSOd
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Happy
#WarriorWednesday to#KIF1A kid Mikołaj, a multitalented 5-year-old who is an awesome singer & loves playing drums & piano. He's made huge progress in the last few months: learning new words, making new friends & even starting to push his walker by himself!pic.twitter.com/OVkBfgGAra
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KIF1A.ORG proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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KIF1A.ORG proslijedio/la je Tweet
Luke Rosen went from an up-and-coming career on Broadway to founder of a patient advocacy group and award-winning advocate for rare disease research. Rosen will give a talk called "KIF1A Superheroes" at 1:10 pm today in Life Sciences 1022. Learn more: http://bit.ly/rosentalk
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Collaboration > competition When open science is widely embraced, http://KIF1A.ORG believes those at the forefront can deliver life-changing & life-saving treatment options for patients faster than ever before.
#RareAsOnehttps://chanzuckerberg.com/rao/kif1a-org/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Transformational news: http://KIF1A.ORG has been selected to join the
@ChanZuckerberg#RareAsOne Network, powering our community to activate a collaborative network of KIF1A researchers & innovators working toward KAND treatment!https://www.kif1a.org/kif1a-org-is-rare-as-one/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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To the 100 million people watching the
#SuperBowl tonight: Join our#relentless mission to find cures for all children battling#RareDisease. Watch#KIF1A superhero Susannah show the world how#WeTackleRare.https://www.kif1a.org/wetacklerare/Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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KIF1A.ORG proslijedio/la je Tweet
Worldwide, 100 million people will watch the
#SuperBowl. 3x that many battle#RareDisease every day.@UpliftingAth is proud to work with amazing advocacy organizations like@KIF1A to provide hope to those families through the power of sport!#WeTackleRarehttps://www.kif1a.org/wetacklerare/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This week for
#ScienceSaturday: New research that may not have direct relevance for KAND, but does add to our understanding of KIF1A function. Plus, new gene therapy guidance from the FDA.https://www.kif1a.org/sciencesaturday-february-1-2020/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Happy
#FriYay from#KIF1A kid Edward! From Edward's family: "Although Edward is legally blind he has an incredible memory. His support person on the bus teaches him to count 1-10 in different languages. Edward then shares this knowledge with his family. Three languages so far..."pic.twitter.com/Ntbftj4RcZ
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How could KAND treatment make a meaningful difference in the daily lives of KAND patients? What matters most to KAND families? Any therapeutic that addresses these daily challenges would be transformative for our families.
@NIH@US_FDA@ncats_nih_govhttps://www.kif1a.org/what-matters-most-to-kand-families/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
http://KIF1A.ORG accelerates collaborative & translational research to rapidly discover treatment for this generation of KAND patients. We have a bold & achievable plan to make KAND treatment a reality. It's time to
#StopTheClock on#KAND.https://www.kif1a.org/research/path-to-treatment/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
KIF1A.ORG proslijedio/la je Tweet
Yesterday, I had the privilege to be a part of the
@ChanZuckerberg offsite. As I listened I was struck by the epiphany that while our fights have many names, we are one community working to remake broken systems to see us all as people with limitless potential.#OneCommunityHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
It's
#ScienceSaturday! This week we meet the#kinesin superfamily & learn about encouraging updates in therapeutic development for rare genetic diseases.#RareDisease#MotorProtein#KIF1A ... &#KIF1B,#KIF1C,#KIF5A, etc., etc.https://www.kif1a.org/sciencesaturday-january-25-2020/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Spoiler alert: The Kinesin-3 group (which includes
#KIF1A) has been designated as The Flash. We just need The Flash to get with it for our KIF1A superheroes! Want to learn more about kinesins? Watch for tomorrow's#ScienceSaturday post on the http://KIF1A.ORG blog.Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We all know who the real
#KIF1A superheroes are, but what if we imagined kinesin motor proteins as superheroes? Our friends at@hancock_lab present SUPERHEROES OF THE KINESIN WORLD. https://sites.psu.edu/hancocklab/media/superheroes-of-the-kinesin-world/ …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Anouk shares her powerful journey from devastation to resilience after her daughter, Lhassa, was diagnosed with
#KIF1A. Today is Lhassa’s birthday. She would have been 6. We honor her memory every day by continuing our relentless mission to find a cure.https://www.kif1a.org/lhassas-superhero-story/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Grab some coffee, tea, or whatever helps inspire that
#ScienceSaturday feeling, because we have a treasure trove of scientific gems to read about this week.#RareDisease#ASO#AAV#KIF1A#Neurodegenerative#Treatmenthttps://www.kif1a.org/sciencesaturday-january-18-2020/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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