The £100m per year offer includes £55m per year @NHSEngland is already spending on Kalydeco for just 400 patients. The lives of the 4000 patients eligible for #OrkambiNow are valued more cheaply. @jamesosh & @BrineMP 'forgot' to tell @heidiallen75 all this
For those constituents following the campaign in which I have been co-signatory, led by @heidiallen75 & @IanAustinMP, re access to Orkambi for cystic fibrosis sufferers, here’s latest from Health Ministers. NHS offering £500m over 5 years and Vertex have agreed to a new meeting.pic.twitter.com/KDz2K00XFJ
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@NHSEnglandNMD@NHSEngland already values the 400 people with cf on Kalydeko over the 4000 (with different gene type)who need Orkambi! How is that fair? My sons life isn’t worth saving coz he has the wrong gene type?#Genetics#OrkambiAndThePipelineDeal#discrimination
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Thank you. Any news of a date yet please? We are increasingly anxious.
#OrkambiNow#precisionmeds4CF -
I’m sorry I don’t, but I’ll keep nagging for details!
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3) but
#OrkambiNow could add 23yrs of life to children who get access now. But@NHSEngland doesn’t ‘value’ those lives in the same way as other diseases, because it’s the same cohort each year.Thanks. Twitter will use this to make your timeline better. UndoUndo
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Thanks. Twitter will use this to make your timeline better. UndoUndo
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1).
@jamesosh &@BrineMinister Thank you for your letter - but@NHSEngland is already “Valueing one life more highly than another” by denying access to#OrkambiNow Not ok to pay for 400 patients w/CF access to one medicine from age 2, & 4000+ with CF no medicine at all@BBCWorldThanks. Twitter will use this to make your timeline better. UndoUndo
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2) Not to mention other high cost medicines. Currently
@NHSEngland only ‘values’ lives that require high cost drugs if there are few people needing them (<500) OR if the cohort changes each year (ie curative) - so a cancer drug can cost more because it will add yrs of lifeThanks. Twitter will use this to make your timeline better. UndoUndo
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