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John L Whiting
@John_CFS
Physician, expertise in Myalgic Encephalomyelitis
Brisbane AustraliaJoined June 2010

John L Whiting’s Tweets

If you read the ABC of MUS treatment GET by this NICE committee member, they state: 'symptoms remind us to do less - but one way out is to do more'! Ask patient to gradually increase activity. I ask is this all theory, bad theory, or has this doctor rever met many ME patients?
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Replying to @keithgeraghty and @NICEComms
No objections to Chris Burton who provided MUS GP training for Medically Unexplained Symptoms & wrote Book, Murphy involved in PACE and Beadsworth, (BACME) supportive of CBT/GET & hosted Per Fink?
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It’s a hard thing to get people outside of the community to understand, and I know it helps no one now and it will be decades too late for many? but I hope one day people look back on this and recognise it for the scandal that it is and how it breached patients’ human rights. 3/3
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And they seemed confused that this was a thing that we would have cause to celebrate in 2021, or that it’s taken this long and this much campaigning just for that to happen. And it struck me how little people know of the sheer depth of harm done to M.E patients. 2/3
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exactly my point, ME patients are not asking that more critically ill or other patients are not prioritised, ME patients simply require their illness understood and considered within avl hospital resources eg quiet area bed. Instead, drs and nurses dont truly understand ME needs!
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Replying to @keithgeraghty @NICEComms and @rcgps
On my last visit to a hospital the ‘fatigue’ clinic shared the same, huge waiting area as the paediatric clinic. The noise, brightness, smells not to mention the miles of corridors to get there showed me how little this is even considered
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As a physio I'm passionate abt promoting physical activity because of the health benefits it can bring. So pleased to see that the statement specifically says that the findings of the research should NOT be applied to people with ME/CFS or Long Covid. #ConsensusStatementonOnRisk
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Benefits of physical activity for people living with long term conditions 'far outweigh the risks' shows new consensus statement: movingmedicine.ac.uk/riskconsensus #MovingMedicine #PhysicalActivity #ConsensusStatementonOnRisk
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Name me another condition that can be so debilitating and with so few treatment options, also e.g. in the UK money for treatment all spent on GET/CBT. #mecfs
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10 years ago, I was carried into our current apartment in an ambulance. I haven’t been able to leave it since. Not once. I’ve never seen my neighbors, I don’t know what our front door looks like from the outside. Please help us, sign this petition. #signformecfs #meawarenesshour twitter.com/loy_daniel_de/…
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This is deeply worrisome. How would it even be possible to decide whether a therapy is helpful, whether outcomes are good, if not by listening to patients? Whose opinion should count, if not the patients'? Whom should therapies benefit, if not patients?
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The Royal College of Physicians argued that anyone advocating for patients is an "activist" that shouldn't be involved in producing clinical guidelines. This included patients, doctors, and professors. It is worrying if this is what the @RCPhysicians believes in private. twitter.com/keithgeraghty/…
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The Royal College of Physicians argued that anyone advocating for patients is an "activist" that shouldn't be involved in producing clinical guidelines. This included patients, doctors, and professors. It is worrying if this is what the believes in private.
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The @RCPhysicians argued that guideline committee members and witnesses who had any affiliation with ME patient organisations were "activists" and should be dismissed. These included doctors and professors with years of expertise and knowledge on ME/CFS.
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Shameful , imagine oncologists that advocate for better cancer organisations, diabetologists that advocate for diabetes self-management, doctors with a lot of experience, are called activists. Clinicians that advocate for #mecfs are activists now?
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The @RCPhysicians argued that guideline committee members and witnesses who had any affiliation with ME patient organisations were "activists" and should be dismissed. These included doctors and professors with years of expertise and knowledge on ME/CFS.
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DwME painfully aware- frontline HCPs - over-worked, burnout risk high, can’t rest- throwing fuel on 🔥 with #mecfs #longcovid, should be concerning to gov- not only wasting money on GET, also losing tax-paying, highly skilled HCPs in terms of productivity, health workforce
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Fresh off the press - DwME statement on new NICE guideline. #MECFS @Dr_M_Guthridge @DrEReinhold @doctorasadkhan @bcdelaney1 @dr_kevinlee @LesleyShazney twitter.com/DoctorsWithME/…
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