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Lovely paper in Dysphagia describing experiences of swallowing on & off non-invasive ventilation. A must-read for clinicians working with patients living with NM diseases: https://link.springer.com/article/10.1007/s00455-019-09997-6?wt_mc=alerts.TOCjournals&utm_source=toc&utm_medium=email&utm_campaign=toc_455_35_1 … A huge thank-you to our colleagues in the USA for carrying out this vital work.
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“We may change our dreams, but we don’t stop dreaming...” wonderful words from a person living with a neuromuscular condition at the Neuromuscular Bridges launch designed to support patients live well with their condition
@bridgesselfmgmtHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Fantastic article summarising exactly why
#QueenSquareSpeechies address their clinic letters directly to the patient. Timely, patient-centred correspondence helps to improve patient safety and achieve positive outcomes. Thank-you for sharing@VerityFord1
https://twitter.com/verityford1/status/1221894250037698561 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Jodi Allen proslijedio/la je Tweet
This is a fantastic opportunity to demonstrate what AHPs are able to offer. An SLT would be amazing in this role
@RCSLT@WestMidRCSLTHub@hevvy0086@JodiAllenSLT@AHPsWestMids@wespeechies@RebeccaBCHSLThttps://twitter.com/GBigNHS/status/1219574499265470466 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Videofluoroscopy protocols should be reproducible, valid, transparent & safe. Dr Bonnie Martin-Harris & team provide reasons to avoid off-label barium mixes... I wonder when
#varibar might be available in the UK?https://twitter.com/DysphagiaCafe/status/1218571318984990720 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
What a fabulous resource developed from NHNN teamwork... congratulations to our Occupational Therapy colleagues for their hard work and innovation
https://twitter.com/susanjhourihan/status/1218446322841391104 …
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Jodi Allen proslijedio/la je Tweet
National POEMS syndrome patient day at UCLH on the 25th of January, hosted by QS CNMD and UCLH Haematology. Patients, carers and health care staff welcome. Email Stephen.keddie@nhs.net for details.
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Flights all booked for my first experience of the Dysphagia Research Society Annual Meeting... excited & nervous all at the same time

Any other Speechies flying out from the UK this year? @Official_DRS@RCSLTResearch@ClinAcSLTpic.twitter.com/MzJX6UwYeAHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Question for the researchers and clinicians of the Twitter world... do you have experience of an online survey tool that has worked really well for you & your participants? All suggestions & recommendations gratefully received
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What’s the value of using Lung Volume Recruitment (LVR) therapies in patients with MND? Nicole Sheers highlights the importance of considering benefit versus burden whilst these respiratory therapies are still under investigation. We look forward to hearing more.
#alsmndsymppic.twitter.com/VfMU0eLxH9
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Thought-provoking pilot study assessing the impact of dysphagia training plus dietary intake of extra virgin olive oil in people living with MND... Dr Vicky Flood describes maintained swallow function in those in the combined group
#alsmndsymppic.twitter.com/4txSxSXjxy
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Interesting findings from Dr Frederik Steyn at
#alsmndsymp. Hypermetabolism in MND not necessarily linked with weight loss... and loss of appetite not associated with bulbar or physical function. What is the clinical relevance of appetite loss in MND disease trajectory?pic.twitter.com/ZhYCa3Woda
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We have tools to assess cognitive & behavioural changes in MND but how well are we able to support management?
@ratkorad describes the development of the MiND Toolkit which aims to support clinicians, family & carers structure decision-making and management
#ALSSymppic.twitter.com/T0eWZ3BsHA
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The reason why we do it...https://twitter.com/mndassoc/status/1202231187093311488 …
2:19Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Eye movement has previously been considered intact in MND/ALS... thought-provoking presentation from Dr Ticozzi on the prevalence of oculomotor dysfunction and it’s association with cognitive impairment in this population
#alsmndsymppic.twitter.com/KgCw8Nt9Ee
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Fantastic overview of the pathophysiology, diagnosis, management & impact of pseudobulbar affect in neurodegenerative disease by Professor Erik Piioro
#alsmndsymppic.twitter.com/FU28EYbxPG
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Jodi Allen proslijedio/la je Tweet
Always interesting to learn about how well interdisciplinary teams around the world work in supporting people with
#MND
Jodi Allen, a #speechtherapist from the UK, talks about her team’s approach to cough & secretion management.@uclh#ALSMNDWithoutBorders#alsmndsymppic.twitter.com/dhc6fb7H5t
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An interdisciplinary SLT-PT model has really helped support our patients living with MND better manage their own swallowing, secretion and chest clearance needs. Bringing together the skills of both disciplines adds value to patient care
@Char_Massey#alsmndsymp https://twitter.com/mndeducation/status/1201707911572934657 …pic.twitter.com/EAEJzHTV0l
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What a place to work in December... beaches, wineries, quokkas, Elton John... we’re on count-down to ALS/MND Conference 2019
@ALSMNDAlliance@mndresearch@mndeducation See you all bright & early tomorrow morning#conferencereadypic.twitter.com/tDdB5AFs8k
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Jodi Allen proslijedio/la je Tweet
£4500 for a cough assist machine that can prevent acute admissions with chest infections. There's the obvious potential to save money, but what about the experience & quality of life of people with NMD?
@MDUK_News@Char_Massey@Ronanastin@Aleks_pietruszhttps://www.bbc.com/news/uk-england-derbyshire-50490335 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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