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Prikvačeni tweet
28/9/2019 59 sec
#SevereME reality check from our Sept conference, we can only hope someone in authority will be equally moved enough to address the continuing deafening silence on#StigmaAndME@CPH_QUB@UlsterUniLHS@UlsterUniBiomed@nihealthleadershttps://youtu.be/0MjJ06dDjzMHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We have many more examples-this one speaks loudly on urgent need 4
#ME education/awareness NIhealthcare providers and/or their children who get#ME are even more desperate/angry than those of us from other professions.@PatientClient@PaulaJaneB@RobbieButlerMLA@RobinSwannMfHpic.twitter.com/YNrlwR6VVV
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Joan McParland proslijedio/la je Tweet
If you are a citizen of the European Union, please go on-line and support the petition for biomedical research on Myalgic Encephalomyelitis (no 0204/2019). Non-EU citizens may sign the paper version.
#MECFShttps://www.s4me.info/threads/how-to-sign-the-eu-petition.13427/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Joan McParland proslijedio/la je Tweet
Dear
#pwME, we are looking for someone with a blog about M.E. / Chronic Illness that would be prepared to blog about#MEawarenesshour. We would love to hear from you if you feel you can help.#ME#MECFS#MyalgicE#ChronicIllness#InvisibleIllness#blog#Awareness#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Joan McParland proslijedio/la je Tweet
More on that
@mahanatx deal with King's College London...Company website makes over-the-top claims of "dramatic" and "potentially game-changing" symptom improvements from web-based CBT program: http://www.virology.ws/2020/01/28/trial-by-error-more-on-the-mahana-therapeutics-deal/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Joan McParland proslijedio/la je Tweet
Latest "News in Brief", summarising ME/CFS and related news for the week starting January 27, collated by
@ozfish, Kalliope and others. <https://www.s4me.info/threads/news-in-brief-january-2020.13108/#post-234073 …>#MEcfs#CFS#MyalgicEHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
NB Change of date to Monday 3rd February. May be of interest to sympathetic healthcare providers also All v welcome
@setrust@BelfastTrust@BelfastTrust@SouthernHSCT@NHSCTrust@PatientClient@NHSC_NI@rcgp_ni@BellPamela1@MEAdvocatesIre#StandingUpToDisbelief#StigmaAndMEpic.twitter.com/sOtY7fI8fD
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When a healthy good friend changes ‘are you too tired for a visit’ to ‘Are you too ill for a visit’ Ah we’re finally getting somewhere!
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Here’s a proper stickman for
#ME@CorinaDuyn A bolt of lightning and ‘pushing through’#FND diagnosis just doesn’t cut it! https://twitter.com/corinaduyn/status/1223887482690920449 …pic.twitter.com/1M0IN7fM50
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5 people followed me and 3 people unfollowed me // automatically checked byhttp://fllwrs.com
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The desperation out there is horrific when Mum of 14yr old child with
#ME bursts into tears on the phone after 10min call & all u can do is refer to Dr. who is knowledgeable abt the disease No cure no effective treatment offered-just listened & believed@PatientClient@HSCBoardpic.twitter.com/7dKVJAEh7I
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.
#ME when the most exciting thing in yr life is reading stuff like this and willing it to happenhttps://twitter.com/bhupeshprusty/status/1223249342607372291 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
@Lisa_J_Smyth quotes from@NHSCTrust & CMO & research & Westminster#MEdebate, not patients themselvesPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Joan McParland proslijedio/la je Tweet
Last chance for people in the UK to sign the petition calling for more EU funding for
#MECFS research. Link below gives instructions on how to sign up and sign.#BrexitDayhttps://www.s4me.info/threads/eu-petition-opportunity-to-lobby-for-funding-for-me-research.10363/page-6#post-232266 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Joan McParland proslijedio/la je Tweet
A Machine Learning Approach to the Differentiation of Functional Magnetic Resonance Imaging Data of Chronic Fatigue Syndrome (CFS) From a Sedentary Controlhttps://www.frontiersin.org/article/10.3389/fncom.2020.00002 …
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The reality of living with
#MEhttps://twitter.com/walls2/status/1222858070876991494 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
All patient volunteer led charity
@hope4mefibroni offering unmissable opportunity please share@nihealthleaders@ECHAlliance@Lindaca87467280@PharmForumNI@ANewScript@PaulaJaneB@mlchealth@Lisa_J_Smyth@PatientClient@RobbieButlerMLA@RobinSwannMfH https://twitter.com/oliviabeatty11/status/1223186078888267777 …pic.twitter.com/5InFOLHG4s
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#ME was called ‘mistaken illness beliefs, depression, laziness, work-shyness, it’s all in your head, chronic fatigue/tiredness & more’ Right up to the day fMRI scans showed its an inability for the body to produce energy on demand. Ulcers were caused by stress too! We can dream https://twitter.com/MECFSNews/status/1222862277889662976 …pic.twitter.com/xuusCR1rNN
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No one sees the preparation needed to escape the cage & no one only close family see the aftermath. We have to chose our battles v carefully & weigh up if guaranteed crash will be worth it BUT it’s only sometimes we actually have a choice! & every crash risks irreversible damagehttps://twitter.com/carolebruce17/status/1222612547607715841 …
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one person followed me and 2 people unfollowed me // automatically checked byhttp://fllwrs.com
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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