Jess

@JessFND

24, Qualified Physiotherapist. Diagnosed with Functional Neurological Disorder Feb 2018. The reality of living and working with FND 🌺

United Kingdom
Vrijeme pridruživanja: svibanj 2019.

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  1. Prikvačeni tweet
    1. svi 2019.

    Raising awareness and reducing stigma one PowerPoint at a time 🙋‍♀️ Got FND? Me too! You are not alone. 💪🌺

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  2. 1. velj

    So it’s been a tough few weeks. My fatigue levels have been horrendous and I lost my beloved dog jasmine after 13years. Taking it step by step and trying to look to the future ⛅️

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  3. 10. sij

    Better day today. Successfully back at work for a half day. I may be limping but at least my arm has calmed down and the pain is bearable! Acknowledging and celebrating each little step forward. Positivity and pacing💪🏻🎉

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  4. 6. sij

    Trying to remind myself that having symptoms is not a sign of weakness. It takes strength to acknowledge and accept that today I am limping, that my arm is spasming, brain not working. Tomorrow will be different. And if it’s not, that too is okay ⛅️

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  5. proslijedio/la je Tweet

    Outcome measures for Functional Neurological Disorder: a review of the theoretical complexities Subjective measures potentially as important as objective measures.

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  6. proslijedio/la je Tweet
    23. stu 2019.

    Advice to neurologists about explaining FND. . Do what you normally do for other conditions. It’s weird and unhelpful to only tell people what they DON’T have and then jump to conclusions about risk factors. And share positive diagnostic signs!

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  7. proslijedio/la je Tweet
    21. stu 2019.

    Thought provoking talk from on We’re taught to be patient advocates on many issues, but are we brave enough to challenge our own and our colleagues preconceptions and occasionally dismissive attitudes to medically unexplained symptoms?

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  8. proslijedio/la je Tweet
    12. stu 2019.

    My therapist: talk to me about how you reward yourself for your accomplishments? Me: reward? *stares blankly* why would I do that? I’m not gonna celebrate for doing what I’m supposed to do Her, takes off glasses: oh boy

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  9. proslijedio/la je Tweet
    7. stu 2019.

    I really am quiet shocked that FND (functional neurological disorder) has a similar incidence of those diagnosed with MS and Parkinson’s yet the awareness and knowledge isn’t there! The testimonials and stories of the patients I’m hearing is shocking

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  10. 7. stu 2019.

    It’s a very odd experience when you find yourself unexpectedly treating someone with the same neurological condition as yourself. It’s currently a little too close to home. Building resilience to this at work is defiantly top of my priority list... 💪🏻

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  11. proslijedio/la je Tweet
    1. stu 2019.

    Psychological factors and FND. Important for some patients but not for others- similar to the relationship between smoking and stroke. Thanks for commissioning this ‘Neurology Minute’ podcast

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  12. proslijedio/la je Tweet
    30. lis 2019.

    OT consensus recommendations for FND by ! Fantastic work

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  13. 25. lis 2019.

    Approached by two colleagues today (physio + OT) who asked for help with treating there FND patient... great open discussion re treatment and discharge planning! Its happening. The word is getting out there and a difference is being made! 🎉🎉

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  14. proslijedio/la je Tweet
    22. lis 2019.

    Physio4FMD protocol paper out now! A UK wide multicentre RCT of physiotherapy for functional motor disorder

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  15. 2. lis 2019.

    Feels like I’m walking a tight rope between physical and mental health. Only now, the rope seems to be getting thicker and closer towards the ground. The fall is less daunting, and I have confidence to go and enjoy myself again 🌤

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  16. 24. ruj 2019.

    It may rain, but above the rain clouds there is always clear blue sky and sunshine. It’s only a matter of time. Just ride out the rain and attempt to enjoy getting wet! ☔️🌤

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    22. ruj 2019.
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  18. 22. ruj 2019.

    Spent the day making 25 meals for the freezer... surprisingly effective form of mindfulness dancing round the kitchen 💃🏽 now ready for those horrendous fatigue days 💪🏻🎉

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  19. 13. ruj 2019.

    Today my right hand and arm decided it was going to have an off day. Then I started limping severely. I focused on what I could do, in an attempt to reinforce working neuro pathways. After 30mins I was rather happy with my creation and able to continue working 🤓

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  20. 4. ruj 2019.

    Brains a little fuzzy today, a sign to step back and slow down 🧘🏼‍♀️ far too easy to take advantage of feeling well and tip myself over the edge 🙈

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  21. 29. kol 2019.

    All part of my quality improvement project, raising awareness of FND within the therapy department at Northampton General Hospital 💪🏻

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