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José David Jarmell proslijedio/la je Tweet
I'm incredibly lucky to live a normal life where i can go to work, have children, pay my bills and socialise when i like. Seeing a friend with m.e. shows how easily those opportunities can be taken away, which is why i support
#meawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#MEAwarenessHour Too many people are suffering because of Chronic Fatigue. And so many others un- or misdiagnosed. Action now!!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
To those who say
#pwME are faking. You’re right, we are. Every day that we fight, we’re faking that we’re not breaking. Every time we smile & laugh we’re faking that we’re not in agony. Every time we distract ourselves we’re faking that we aren’t terrified.#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Do “normal” people know what it is like to have a family member who is bed-bound? What it means to not be able to wash yourself, make yourself food, or enjoy the little things in life? ME/CFS can take all that from you. Why don’t we change that?
#MEawarenesshour#millionsmissingHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
So finally after just a few weeks, we actually really did it and
#MEawarenesshour was displayed in the UK Top 30 real-time Twitter Trends at #24!

pic.twitter.com/acBdDGP1gj
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Everything is really important, until you get ill. Then you realise that there was only thing really, really important. Your health. Without health.....well, just imagine itfor a few minutes. Nothing matters but your health and people with M.E don’t have that
#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
My son has missed me in his life for the last 5 years. I am bedbound are barely able to tolerate his presence. Due to severe
#me/cfs. He has nightmares that I’m asleep all the time? He deserves better, Mummy guilt is dreadful.#MEAwarenesshour.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Jason et al 2020: -Prevalence of illness paediatric
#MECFS (5-17yrs) was estimated at 0.75%. -Equivalent to ~ 1 in 130 people. -Only 1 in 20 people already had a diagnosis. -Colby et al 2011 found#MECFS largest cause of school absence at 42% 1/3#MEawarenesshourPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#MEawarenesshour Millions of us are ‘living’ with#ME and, despite our increasing numbers, nothing is being done to help us... Many of us have been missing from society decades, we feel ignored, forgotten, invisible. We want our lives back. Please fund#ME research.@MattHancockpic.twitter.com/ZRh6Cru0ME
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Das passiert in Deutschland, wenn man körperlich schwerkrank mit ME/CFS ins Krankenhaus geht!
@sz@faz@welt@3sat@Tagesspiegel#MEawarenesshourhttps://twitter.com/lisat89133876/status/1223348980488245250 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#MEawarenesshour made it to number 24 in the Twitter Trending Charts. What an amazingly committed community, there is strength in our numbers. Thank you

XXXpic.twitter.com/uuox5JHxhl
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Dr. Koroshetz doesn't get it!
#pwME are#FightingForOurLives yet@NINDSdirector refuses to fund research to end the#MyalgicE health crisis. This is#NotEnough4ME & we won't stop fighting! Sign/share@meactnet petition: http://bit.ly/2qI3Xk5 https://youtu.be/nobpnGtO4V0Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#MEawarenesshour I don't know what it's like to be healthy. Sick with ME since 5-6 & 24 now. Give me a chance, please. I'm very ambitious, creative, compassionate & would love to contribute to society. My whole world is a dark room.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
We're so grateful for all
#PwME in the community who use their voices to raise awareness of just how devastating ME/CFS is. In doing so, you also demonstrate the importance of funding critical research into this disease. Together we will fight to#EndMECFS.#MEAwarenessHourhttps://twitter.com/JarmellJose/status/1225149410667044865 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#MEAwarenessHour We need our situation to be taken up seriously. Too many people are suffering because of Chronic Fatigue. And so many others un- or misdiagnosed.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
The suggestion that M.E. (a complex multi-system disease) is psychosomatic is the kind of b.s. that would get a student a failing grade. It’s weak dime-store psychology, passed off as medical fact, because many doctors lack the humility to say ‘I don’t know.’
#meawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
#AbleismInFourWords "Please meet us halfway." Doctor to a 14 year old child in terrible pain with severe ME, Fibromyalgia and EDS. She was sobbing. He thought she wasn't trying hard enough to recover!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
Promising research! Speaking of promising research, the NIH could sure improve in that department pertaining to
#MECFS. We need you to do more. You are not getting us to success. Fund trials. Listen to the outcry! Take Action. Lead. DO BETTER.#NotEnough4MEpic.twitter.com/fIRr6jjF3b
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
I get that u older, white men r big on Parkinson’s. It’s a terrible disease w huge suffering by (u guessed it) older, white men. But don’t u care about women? POC? Kids?
#MEcfs is more than 2x as burdensome as#PD but gets just 0.075 of the $. Why wont u fund MEcfs?#NIHMisogynyhttps://twitter.com/NINDSdirector/status/1224401779346919428 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
José David Jarmell proslijedio/la je Tweet
It is
#meawarenesshour tomorrow@OMF. It is really hard for patients to try to recruit people to participate. You have many, many followers and we need to be heard. Please announce!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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