Janet Freeman-DailyOvjeren akaunt

@JFreemanDaily

Writer, speaker, science geek, lung cancer patient/activist. Chat mod, co-founder, & alum, aerospace systems engineer (retd)

Seattle area
Vrijeme pridruživanja: lipanj 2009.

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    Odgovor korisnicima i sljedećem broju korisnika:

    Great to have the opportunity to share our work on using hashtags in cancer care through

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  2. proslijedio/la je Tweet
    prije 16 sati
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    3. velj
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  4. proslijedio/la je Tweet
    31. sij

    Healthy cells in smokers’ lungs have a high burden of mutations, similar to the mutational profile of lung cancer.

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  5. proslijedio/la je Tweet
    prije 23 sata

    Are doctors & patients still nihilistic about a new dx of lung cancer? How can we better study the effects of stigma & nihilism on cancer patients? Join us this Thursday at 8pm ET/5pm PT as we discuss this & more during Chat. Read more here:

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    How does stigma affect lung cancer patients & research? What can we as a group do to best address stigma & nihilism? Join us this Thursday at 8pm ET/5pm PT for Chat as we brainstorm. Read more here:

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    3. velj

    Another one bites the dust. This time an anti-ganglioside antibody with immunotherapeutic properties. Sad news, indeed. United Therapeutics Announces Study of Unituxin® (dinutuximab) for Small Cell Lung Cancer Did Not Meet Primary Endpoint.

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  8. The lung cancer community lost a dedicated, compassionate advocate today, and I lost a good friend. Journey on, Don "Superman" Stranathan (). You are missed.

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  9. proslijedio/la je Tweet
    1. velj

    Great collaborative paper DFCI MSKCC MDACC: PDL1 50% is not a magical number for selecting 1L pembro- it's a continuous variable w increasingly better outcomes the higher the PDL1.

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  10. Looking for rapid autopsy program interested in collecting cancer tumor tissue shortly after death for research. Asking for patient nearing end of life who wants to make arrangements. If you know a program near Los Angeles CA, please name facility.

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    29. sij

    BREAKING: FDA Grants Priority Review to Selpercatinib in RET fusion+ non–small cell lung cancer, RET-mutant medullary thyroid cancer, and RET fusion–positive thyroid cancer, based on results from the phase I/II LIBRETTO-001 trial.

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    An electronic records company, used by doctors, admits that it TOOK KICKBACKS to INCREASE OPIOID PRESCRIPTIONS.

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  14. Great thread with important comments about treating Leptomeningeal Disease (LMD) in non-small cell (NSCLC), and not just for EGFR+ patients. Wish all responses included so more would read them.

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    24. sij

    Patients, especially those of us with disease, for whom it is a marathon, not a sprint, agree. We hope will consider this.

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    25. sij

    I didn't see this talk because I've been on the DAA beat for years, but this bears repeating: can be treated, almost everyone can be cured, cure reduces risk & those who already have HCC can be treated too!

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    23. sij

    Seattle people: There is a scam phone call going down that purports to be from Seattle City Light. Looks legit on your phone, the callback # sounds legit. They threaten to cut off your service in 30 minute if you don't pay $400 cash. Ignore them.

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  18. proslijedio/la je Tweet
    22. sij
    Odgovor korisniku/ci

    “The patient failed treatment x.” Patients 👋 never 👋 fail 👋 therapies. Our therapies fail our patients (too often). Amazed how persistent this phraseology still is!

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  19. proslijedio/la je Tweet
    22. sij

    Love our University of Colorado lung clinical and research team. Thanks for a great 2019 and here's to an even better 2020!

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  20. Healthcare workers, advocates, and media need to choose words carefully to avoid raising false hopes. One of my pet peeves: using "cancer-free" to describe a metastatic patient who had a clear scan while on a TKI. What language bugs you?

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