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Prikvačeni tweet
“If I can stop one heart from breaking I shall not live in vain, If I can ease one life the aching, Or cool one pain, Or help one fainting robin unto his nest again, I shall not live in vain.” —Emily Dickinsonpic.twitter.com/w1s58Uezwi
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Together we are many Together we are strong Together we are proud !!
#RareDiseaseDay#primaryimmunodeficiency#immunedeficiency#piliving#invisibleillness#invisibleillnessawareness#invisibleillnesses#invisibleillnesswarrior#butyoudontlooksick#immunesystem#immunologyhttps://twitter.com/rarediseaseday/status/1214518323897098240 …
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#EURORDISAwards2020 Make sure to cast your vote before February 18th!! So many wonderful, beautiful, inspiring and heartwarming photos! https://blackpearl.eurordis.org/photo-award/ https://twitter.com/eurordis/status/1222101489335685120 …
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A New Lease On Life! : Good early results with
#genetherapy for rare#immunedeficiency#XLinkedChronicGranulomatous#primaryimmunodeficiency#TuesdayThoughts#TuesdayMotivationhttps://twitter.com/BostonChildrens/status/1223320041086767104 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
RT TO TEACH!: Common Variable Immunodeficiency http://info4pi.org/information-booth/encyclopedia/primary-immunodeficiency-definitions#term48 …
#primaryimmunodeficiency#cvid#commonvariableImmunodeficiency#cvidawareness#cvidawarenessuk#cvidwarrior#piliving#cvidlife#cvidstrongpic.twitter.com/9WzGIla0kp
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RT 2 TEACH!! Adults can get
#PrimaryImmunodeficiency too!! Check out the 10 Warning Signs of PI specifically for adults!#immunodeficiency#immunedeficiency#immunodeficient#immunedeficient#TuesdayTips#TipTuesday#TuesdayThoughts#TuesdayMotivationpic.twitter.com/BmrFMQxxkI
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Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
Doctor visits are an important part of a child’s healthy development. But they can sometimes cause stress. http://bit.ly/2GFyntk pic.twitter.com/oCSEiqGymd
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Sometimes it's the little things... what "small victories" have you experienced on your patient journey that had a large impact?
#JMF#info4pi#primaryimmunodeficiency#thelittlethings#mondaythoughts#mondaymotivation#MondayMood#mondayvibesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
#MyPIStory “I was officially diagnosed w CVID when I was 12. I had been getting ear infections from when I was a baby till I was 10, & had tubes put in my ears 3 times. I had also battled with asthma since I was 3,getting pneumonia frequently ” Credit:@WorldPIWeek#livingwithPIpic.twitter.com/J4n6k4uBFf
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#Spotted in Detroit Airport!
Thanks to #NewbornScreening for SCID, Andy was screened, diagnosed, treated & cured...#JMF#info4pi#newbornscreeningsaveslives#SCID#SevereCombinedImmuneDeficiency#bubbleboy#strength#courage#hope#advocacy#scidwontstopthiskid#scidwarriorpic.twitter.com/ON9P6dRjlg
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
#VendrediLecture - Cytomégalovirus et déficience en#NOS2. Comment une infection a priori bénigne devient-elle mortelle ?@casanova_lab et son équipe replacent à nouveau la#génétique humaine au cœur des maladies infectieuses :http://bit.ly/2Ohb2RnHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Some patients with a
#PrimaryImmunodeficiency diagnosis have a known#gene defect, while others may have an unidentified gene defect, which is why#geneticsequencing has become so important in recent years.#FridayThoughts#immunedeficient#immunodeficiency#immunologyHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Patient with unusually severe infection leads scientists to a rare type of
#immunedeficiency https://www.rockefeller.edu/news/27419-unusual-patient-case-cmv-rare-immune-deficiency/ …@casanova_lab@RockefellerUniv#medicalscience#PrimaryImmunodeficiency#science#RareDisease#scientificdiscovery#medicalresearch#medicaldiscoveryHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Meet Brenden Whittaker, who took part in a clinical trial to treat
#XLinkedChronicGranulomatous disease led by Dr. Donald Kohn! https://blog.cirm.ca.gov/2017/01/19/stem-cell-profiles-in-courage-brenden-whittaker/ …@UCLAstemcell@CGDSociety@CGDAofAmerica#ThankfulThursday#primaryimmunodeficiency#ThursdayThoughtsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
I was an intern when I met my first baby with a positive newborn screen for SCID. My fascination in how many of these babies were "normal" became an IRB and my research study for the next 4 years. I'm proud of its final product in JoCI: https://rdcu.be/b0WGG
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X-Linked Chronic Granulomatous Disease (
#xCGD) patients doing well after#genetherapy clinical trial led by Dr. Donald Kohn@UCLAstemcell#CGD#stemcell#xlinkedchronicgranulomatousdisease#chronicgranulomatousdisease@CGDSociety@CGDAofAmerica https://stemcell.ucla.edu/news/six-patients-rare-blood-disease-are-doing-well-after-gene-therapy-clinical-trial …pic.twitter.com/KpFgYXlvly
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Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
The AAAAI Primary Immunodeficiency Diseases Committee working group report reviews appropriate methods, tools, and resources for the genetic testing of patients. Accurate interpretation is integral to diagnosis and management. http://bit.ly/2REHo9O
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RT to help begin the “What is Primary Immunodeficiency?” conversation! http://www.info4pi.org
#EndTheStigma#primaryimmunodeficiency#butyoudontlooksick#piliving#WednesdayThoughts#WednesdayWisdom#WednesdayMood#immunedeficient#immunodeficiency#sicktoomuch#spooniepic.twitter.com/aElI4HNgf5
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Jeffrey Modell Foundation (JMF) proslijedio/la je Tweet
#DYK that some of the rare diseases treated by PPTS are:#PID,#CIPD and#Hemophilia? Find out more here: http://bit.ly/38KxivG pic.twitter.com/yazr6xoSXl
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