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Clark Ellis
@IamClarkEllis
I write fiction and about ME/CFS. Advocate, autodidact, christian. Interested in everything.

Clark Ellis’s Tweets

The argument (& headline) used in this article is simply at variance with the facts. One wonders what mindset produces such partisan claims. And why does tag in its tweet? This is misinformation-based propaganda, not sci journalism #MECFS 1/8
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The British guideline for CFS/ME is the result of activism, not research, writes @Livelandmark sciencenorway.no/chronic-fatigu @guardianscience #MECFS @NatalieGrover #chronicfatigue
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I saw you at the bath clinic, you were the best M.E doctor I ever saw. But under the same service I was made to do GET that landed me in hospital close to a heart attack for a month. I didn’t see you again so you wouldn’t have known. Sadly many people were harmed.
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#notinmyname This statement supposedly from RCs does not represent my views as a Clinical Advisor to the . I find it utterly inappropriate for it to have been released after the conclusion of the process.
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Some of my esteemed colleagues just need to grow up. Listen to your patients; look at the evidence impartially; you will learn what works & what doesn’t. @RCPhysicians @RCPEdin as your Fellow I say put your ego aside, it’s pathetic. Stop harming patients- enough #MECFS #LongCovid twitter.com/elisaperego78/…
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I’ve never seen statements from doctors colleges so unsympathetic, lack of recognition of patient advocacy groups, paying so little respect to evidence based findings from non-doctor stakeholders. Get in the bin with this #mecfs statement
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We've joined @RCPEdin, @rcgp, @rcpsych, @AoMRC, @FSEM_IRL and @FOMNews in signing a joint statement in response to the guidance below. Read it in full here: rcplondon.ac.uk/news/medical-l
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I became disabled in my early 20s. I lost friends, my entire life savings, jobs, any chance of a career that I worked so hard for. To imply that anyone would choose this is disgusting. These “gains” do not exist and are rooted deeply in ableism.
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If I had #LongCovid, I'm not sure I'd be happy that this doctor was on NICE guidelines committee for #PostCovidSyndrome given their views on people with unexplained symptoms Read more of her views here eapm.eu.com/wp-content/upl #longhaulers #CFS #MEcfs #IBS #FMS #CRPS #Headache
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A colleague shared this in a #longCOVID forum I'm in. This illness has made us reflect on how we have treated patients in the past & how this will shape us into better doctors for the future. To anyone I have ever made feel this way I am truly sorry. Good will come from this
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Fantastic that this news can now be made public. Register via the website to receive updates and notification of when recruitment goes live in early 2021.
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**BREAKING NEWS** £3.2m research funding for #MECFS awarded jointly by @the_MRC @NIHRresearch for @decodeMEstudy, led by @CGATist @mrc_hgu @mecfsbiobank @LSHTM @sonyachowdhury @actionforme @s4me_info Visit decodeME.org.uk for FAQs and to register to take part!
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The whole 5 mins of this video on chronic illness on my insta or FB page. It would mean a lot to me if you listened. It’s an important time to raise awareness for all those living with chronic illness as their personal lockdown will continue long after the global one lifts.
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Thread UK people who say they have ongoing #COVIDー19 symptoms, neurological issues, bad fatigue, etc & are being shunted to anti-anxiety treatments & talk therapy. Which is how the UK deals with the debilitating post-viral neuroimmune illness #MEcfs.
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Says antiviral drugs against all coronaviruses could and should have been developed after SARS. Big Pharma saw no profits & not enough govt funding. Needs new non-profits to make vaccines, antivirals ready for next pandemic
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The #SARS_CoV2 pandemic could have been prevented - my opinion, at virology blog. Please take the time to read it and be outraged. bit.ly/2xnKjxh
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Is it any wonder why we have such a difficult time with medicine, when tweets and viewpoints like this exist?:
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Once you let your identity become your diagnosis, your goal changes. The goal is no longer to seek treatment to get better; the goal is to ensure no treatments work so that you can keep your diagnosis and your identity. This is why you can't help people who don't want help.
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Last week my Dad (95) was asked twice by his practice coordinator if he wanted to sign a DNR. He refused and told her why. Within 48 hrs a letter signed by his GP arrived informing him the GP had overruled and signed on Dad's behalf. 48 hrs later Dad is a broken man.Given up.
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Thanks Mike for putting this here, I just wanted to retweet so hopefully more people see it. , I can't really articulate how I feel about this, I've said before I have never heard anyone with your platform talk with such understanding, compassion and knowing. Thankyou.
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Replying to @mikehinford @StenHelmfrid and @jaseygalore
Here's a shorter version.
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Spain, latest Covid-19 data, according to Health Ministry: 94,417 cases (up 9,222 in 24hrs); deaths 8,189 (up 849); 5,600 in intensive care. These are bad numbers, with a small rise (to 11%) in the daily percentage increase in new cases.
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