IDFA

@IDFAustralia

The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have PID-Primary Immune Deficiencies.

Australia
Vrijeme pridruživanja: studeni 2015.

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  1. prije 9 sati
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  2. 3. velj

    This Blog post from I.G. Living speaks about the importance of self-advocacy. This is particularly important for patients living with long-term such as . "I am the Captain of My Own Healthcare Ship."

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  3. 31. sij
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  4. 30. sij
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    28. sij

    😀Hot from the press👍! The PDFs of the speakers meeting are now available:

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  6. 28. sij

    Thank you to Phillip, Christine and Matthew from Takeda for meeting with the IDFA team today. We had a fabulous meeting, sharing and exchanging ideas to improve the quality of life for patients living with primary and secondary .

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  7. 25. sij
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  8. 23. sij
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    19. sij

    Another baby diagnosed with SCID in PICU :-( In the absence of neonatal screening for SCID, watch the lymphocytes and the thymus at the very least. Screening for SCID is a must!!

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    17. sij

    The latest update on genetic causes of inborn errors of immunity has just been published in J Clin Immunol. Thanks to all the committee members who have worked so hard to put this update together! Our field continues to go gangbusters!!

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  11. 18. sij

    Do you have a -CarePlan? Sometimes it helps to put it in writing. Use this template from the Black Dog Institute as a guide.

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  12. 17. sij

    'Giving Life' by the Australian Red Cross Lifeblood has returned to our screens. Catch Episode 7 today on Channel 9 at 1pm (AEST). Find out how can save a life. (Check your local guides for exact program times or changes.)

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  13. 16. sij
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  14. 15. sij
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  15. 12. sij
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  16. 12. sij

    Thank you for thinking of us . ❤️

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  17. 9. sij
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  18. proslijedio/la je Tweet
    18. pro 2019.

    IPOPI's PID info leaflets just published! The new series comprises 3 leaflets dedicated to ‘A Guide for Pulmonologists’, ‘A Guide for Gastroenterologists' and ‘The Value of SCID Newsborn Screening' Read more (PDF and eBook)

    , , i još njih 2
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  19. proslijedio/la je Tweet
    9. sij

    If you experience power outages due to the bushfires, take extra care with refrigerated medicines. Visit the NSW Health website for more information on how to best manage medication during and after bushfires

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  20. 7. sij
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