GlobalSkin

@IADPO

The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.

Global
globalskin.org
Joined October 2015
653 Photos and videos Photos and videos

Tweets

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  1. 34 minutes ago

    Tell us your story! This year for we would like to feature stories about what it's like to live with a rare dermatological disease. Share your story:
    2 retweets 4 likes
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  2. 2 hours ago

    Tell us your story! This year for we would like to feature stories about what it's like to live with a rare dermatological disease. Share your story:

    1 retweet 4 likes
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  3. Retweeted
    Feb 4

    Skin among the most prevalent, preventable and treatable types. We must prioritize for improved health outcomes in Europe and indeed around the world. Thx for leadership on this.

    On , we support 's on prevention. Together with and other HCPs, patients, trade unions & MEPs, we urge action on more measures needed in the context of Europe’s . Read more at
    2 retweets 4 likes
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  4. Retweeted
    Feb 6

    is on February 28th! PEM Friends is part of the GlobalSkin RareDERM Community. Pemphigus and Pemphigoid are  rare dermatological diseases. As a community, we are raising awareness for rare dermatological diseases worldwide.

    1 retweet 2 likes
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  5. Feb 4

    Members, your expertise is needed to help shape the next three to five years of GlobalSkin’s Membership programming to support your work in the best ways possible. All Members will receive a link to the survey by email today. We look forward to hearing from you!

    3 retweets 6 likes
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  6. Feb 4

    Today's spotlights emerged from the common vision of its founding members to contribute to the safe integration into the community of children & adults affected by various allergies. Visit:

    2 retweets 3 likes
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  7. Feb 4

    On , we support 's on prevention. Together with and other HCPs, patients, trade unions & MEPs, we urge action on more measures needed in the context of Europe’s . Read more at

    1 retweet 5 likes
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  8. Feb 3

    February 28, 2022 is & GlobalSkin is proud to support our RareDERM Community. We have created materials to help bring awareness to rare dermatological conditions. Download them today!

    4 retweets 3 likes
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  9. Retweeted
    Feb 1

    One important month, ending in one important day. February is . Share your story and help Canada tell the world about this that affects men, women & children. We need more awareness, research and funding! Let's raise our voices.📢

    8 retweets 20 likes
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  10. Jan 31

    Have you found a promising way to treat your eczema? Have an idea for what causes it? Winning submissions will be awarded cash prizes & help with sharing your idea for research! Cash prizes totaling $7500.

    2 retweets 8 likes
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  11. Jan 28

    Today's spotlights - dedicated to funding research aimed at treating & curing , a group of devastating and life-threatening skin disorders that affect children from birth. Visit

    3 likes
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  12. Jan 28

    February 28, 2022 is . GlobalSkin and our 90 RareDERM Community Members look forward to adding our voices to this important day to raise awareness for rare dermatological diseases. Social media cards will be shared soon!

    4 likes
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  13. Retweeted
    Jan 20

    FORMAL TEXT NOW OUT! The UN Resolution goes far beyond health. It recognizes "the need to promote and protect the of the over 300 million PLWRD and families worldwide". 👉 A huge call to .

    16 retweets 14 likes
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  14. Jan 27

    So pleased to bring together GlobalSkin Members in Europe for "Mobilizing for the Future" Forum today! Thank you to presenters, panelists & Members for your insightful contributions around GRIDD data & the European Community.

    1 reply 2 retweets 6 likes
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  15. Jan 27

    Thank you to our Members & supporters for your involvement with the GRIDD project over the years. In 2023, real global data collection begins! Learn about next steps here:

    1 retweet 5 likes
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  16. Jan 26

    Today is in Canada. staff join all Canadians as we raise awareness for mental health initiatives by sharing posts, tweets and texts today. We will keep listening, keep talking and keep being kind to ourselves and each other.

    3 likes
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  17. Retweeted
    Jan 25

    🤗📢We are proud to announce EUPATI's latest collaborative project: ! EUPTIConnect creates synergies between EUPATI Patient Experts and researchers and to enhance . Interested? More information 🔥👉

    12 retweets 18 likes
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  18. Jan 25

    Reminder to GlobalSkin-Europe Community Members - there is still time to register for our upcoming virtual Forum: 'Mobilising for the Future', taking place on January 27, 2022. Please check your inbox for the registration link, agenda, speakers and all details.

    3 retweets 5 likes
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  19. Jan 24

    Your BIG IDEAS could = $ cash prizes! Our global contest invites patients & caregivers to submit ideas for research. Enter here:

    1 reply 1 retweet 3 likes
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  20. Jan 21

    The GlobalSkin January Members Matter Bulletin is out! Read about our upcoming Community events, AGM, programming & more. Check your inbox for details. Learn how to join our global patient organization alliance

    3 likes
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