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Harsha K Rajasimha proslijedio/la je Tweet
Community health workers are a really important bridge to underserved populations. They can be your eyes and ears so that you know a community’s real concerns and needs.
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
“We have to figure out how to establish the collaborations we need to provide health equity” -Khristal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
.
@trendcommunity using social listening to listen and observe. Don't just look for answers in the obvious places.#DataDIY#RareDiseasepic.twitter.com/oKVrd3bi27
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Harsha K Rajasimha proslijedio/la je Tweet
"Your hypothesis doesn’t have to be right. You just have to ask really good questions. And there is no shame in being wrong." - Dr. Pullen, Chion Foundation
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
Key takeaways from Kristin and
@fastercures.#DataDIY#RareDiseasepic.twitter.com/u9kPFu9XBu
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Harsha K Rajasimha proslijedio/la je Tweet
With a new year comes new opportunities. Our CEO, Kimberly Haugstad, is excited to kick-off a new decade in
#raredisease.https://globalgenes.org/2020/01/07/happy-new-year-from-kimberly-haugstad/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
Dr. Spencer of
@BioPontis shares about the drug discover process.#DataDIY#RareDiseasepic.twitter.com/HYtSRz9s7x
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Harsha K Rajasimha proslijedio/la je Tweet
At
@GlobalGenes#DataDIY David Spencer noted that the typical practice of pharmaceutical companies reaching out to patients for their perspective shortly before a Phase 1 trial is far too late.#patientengagement#raredisease#clinicaltrialspic.twitter.com/rZZ7heRMPN
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Harsha K Rajasimha proslijedio/la je Tweet

#REACTcongress n#IRDiRC#conference
Check out the list of #speakers that will present cutting-edge#research#innovation#diagnosis#policy#orphandrug#AI#advancedtherapies#precisionmedicine#clinicaltrials#drugdevelopment#patientengagement https://www.react-congress.org/ pic.twitter.com/7Nl7w9e5DP
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Harsha K Rajasimha proslijedio/la je Tweet
Can you describe your problem in a single sentence? If not, you haven’t identified it says Ryan Jancaitas of
@awscloud@AWS_Nonprofits & worked with@EBResearch to do just that.@GlobalGenes#DataDIY@ryjan12pic.twitter.com/k4srFyHJfk
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Harsha K Rajasimha proslijedio/la je Tweet
Dr. Spencer says that patients and caregivers know a lot more about the disease than most of the physicians that they talk to. How do we get that input appropriately into clinical trials?
#DataDIY#RareDisease@BioPontisHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
"Change mindset from donations to investments" - Venture Philanthropyhttps://twitter.com/GlobalGenes/status/1224729486710591490 …
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Harsha K Rajasimha proslijedio/la je Tweet
Tomorrow is the start of our final
#DataDIY seminar. Join us to hear from experts at@awscloud@bensbutler@VicCondron You can access our previous sessions and download our workbooks on our website.#CareABoutRarehttps://globalgenes.org/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
Who will be in Houston next week? If you can't make it, be sure to catch our livestream, and check back in here, where we'll also be live tweeting our tuesday
#DataDIY session.#raredisease https://datadiyworkshop4.mediasiteservices.com/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Harsha K Rajasimha proslijedio/la je Tweet
From his groundbreaking work in
#HIV to today, Tony Fauci intimately knows the evolution of#EAP from parallel track to where we are today. I’m grateful for how far we’ve come, but the evolution must continue.#ExpandedAccessSummit#EA3pic.twitter.com/NNwvEancPA
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Harsha K Rajasimha proslijedio/la je Tweet
Dr Janet Woodcock notes that despite recent
#FDA innovation for#EAP challenges remain. Business reasons, equitable EAP access, and supply are among these challenges.#ExpandedAccessSummit#EA3pic.twitter.com/eWyfpm3o6W
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Harsha K Rajasimha proslijedio/la je Tweet
"We didn't know what our barriers were because of
#misconceptions in the media. We believed that it would be the#FDA and#industry and that just was not the case."@KhrystalKDavis speaks on her own experience with#EAP@Expanded_Accesspic.twitter.com/Vq8ZRYQNy5
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Thanks for the fine photo
@KhrystalKDavis your support of our unique#decentralized#clinicaltrials approach means a great deal of validation!https://twitter.com/KhrystalKDavis/status/1222243479494983681 …
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Harsha K Rajasimha proslijedio/la je Tweet
USA Spending $43 Billion on Orphan Indications. United Kingdom Spending £15 Billion on Rare and very rare conditions. Canada allocated $1 Billion toward
#rarediseases # AND INDIA?? Scrapped ₹100 Crore corpus. # Even if allocated what will happen in ₹100 Crore?@MoHFW_INDIApic.twitter.com/1iJMY1i6TU
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Harsha K Rajasimha proslijedio/la je Tweet
Breaking news!
New Jersey will soon start #SMA#NewbornScreening for all babies!https://www.nj.com/news/2020/01/infants-in-nj-will-now-be-screened-for-this-debilitating-disorder.html …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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