Little Mama Murphy

@HappyLittleHugh

I'm Emma, mum of 2 boys, one with an genetic condition (). SEN teacher & blogger.

Birmingham, England
LittleMamaMurphy.co.uk
Joined July 2011
328 Photos and videos Photos and videos

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  1. Pinned Tweet
    Feb 12

    Massively honoured and excited to be shortlisted for my ‘Dear Doctor’ post in the Made an Impact category in the if you liked it and wanted to vote for me you can do it here:

    1 reply 2 retweets 6 likes
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  2. Apr 3

    If you’ve got a few minutes spare could you fill in this survey on brand awareness for a friend? It takes a couple of minutes and you will be entered into a draw to win £100 gift voucher.

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  3. Mar 31

    Just chilling in the pool at

    7 likes
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  4. Retweeted
    Mar 27

    'The seizure won't stop by itself. Each time this happens Hugh is completely reliant on us to breathe for him, to get drugs into him to stop the seizure; to save his life ...'

    1 reply 3 retweets 4 likes
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  5. Mar 26

    Today is epilepsy awareness day. I’m sure you all know Hugh has epilepsy. I might have mentioned it once or twice! Hugh’s profound disabilities are nothing in comparison to his epilepsy. Epilepsy pretty much controls our lives- now to a lesser extent th…

    1 retweet 3 likes
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  6. Mar 26

    This is the fabulous lady that did Hugh’s birthday party. There were a huge mix of kids there and she connected with them all. Everyone was involved and interested and Hugh absolutely loved it....

    2 likes
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  7. Mar 26

    More photos from Hugh’s birthday. He had the animal lady- Lucy May's Animal Days - for his party and absolutely loved it. Xx

    1 like
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  8. Retweeted
    Mar 24

    Happy 8th Birthday to this amazing little man - Hugh! How he taught us to be happy and grateful for all that we are and all that we have. Have a fantastic day Hugh! Lots of love ❤❤

    1 reply 4 retweets 9 likes
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  9. Retweeted
    Mar 21

    Today we're launching our ambitious new five-year strategy: Together for the 49,000+. Our core focus is achieving positive change for seriously ill babies, children & young people, their families, & the services that support them. +

    , and
    3 replies 36 retweets 50 likes
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  10. Mar 22

    Hugh is very lucky to have so many lovely people looking out for him and wanting to make life easier for him. His/our friend Jason is running the London Marathon in a couple of weeks for him. How amazing is that? Xx...

    2 retweets 8 likes
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  11. Mar 21

    Yes, Hugh is in bed wearing a hat. No, it’s not *that* cold! But I had to share this gorgeous fox hat that a lovely friend at work handmade for him. A fox hat for this little dude with FOXG1 syndrome. I absolutely love it. I’ve even got one to match …

    1 reply 10 likes
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  12. Mar 17

    Well done Ireland! 🇮🇪 on ☘️. Get in!

    1 retweet 6 likes
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  13. Mar 16

    Love this video for World Down Syndrome Day - 21st March 2018

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  14. Mar 16

    It’s the last day to vote! So if you liked my post ‘Dear Doctor’ please consider voting for it in the Biggest...

    4 retweets 2 likes
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  15. Mar 15

    Hugh’s delighted to be home from hospital and his big brother Sean is clearly happy to have him back too. Love the way they’re looking at each other here. Pure brotherly love. Hugh’s much better than he was thankfully. He’s got a few more days of antibi…

    1 reply 11 likes
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  16. Mar 13

    Hugh’s has a mixed day. Some smiles- especially when the paracetamol has kicked in, a few sad times. But he’s...

    2 likes
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  17. Mar 13

    What else would you want to do when you’re poorly and in hospital except watch @bradderswalsh on @itvthechase ?

    1 retweet 3 likes
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  18. Mar 13

    Back in A&E after another blue lighted ambulance ride. He’s feeling very sorry for himself but I’ve managed to catch half a smile. Not seizures this time but a chest infection that saw him deteriorate rapidly this morning to the extent that he couldn’t b…

    4 replies 1 like
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  19. Retweeted
    Mar 12

    Flo Longhorn has a marvellous assessment tool, her 'Happiness Audit' schools use it to check they are enabling their students with PMLD to be as happy as possible!

    4 replies 17 retweets 26 likes
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  20. Retweeted
    Mar 12

    Dear might there be space to be a fully inclusive Conservatoire please? 😬 would really love this!! 🎶🎶

    . great to hear the and learn about their new home! Shame there are no accessible toilets inside!
    3 retweets 7 likes
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  21. Mar 13

    Hi I’ve made a video about my sons that I thought you might be interested in

    2 likes
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