Tone deaf or do I just genuinely disagree that acceptance of eating disorders is better than regarding them as problems to be worked on? I also disagree that it is more compassionate to encourage people to carry on than to encourage them to overcome potentially fatal disorders.https://twitter.com/zoupmachine/status/992966205815353345 …
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I know what you mean. I have nerve damage which gave me trigeminal neuralgia. One of the meds prescribed for that had wretched side-effects; i lost the capacity to feel joy. Apparently this med is commonly prescribed for epilepsy. It astounded me that that was an acceptable trade
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Me too! Agonisingly painful, isn't it? I slept for 16 hours a day too & couldn't even follow the plot of a 1 hour police drama like CSI. Work was out of the question & conversations were difficult. If you still have the nerve pain, do you know about this? http://www.cefaly.com/
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I think stimulating the trigeminal nerve would be unwise, as it's misfirings cause the problem in the first place. Some people even go so far as SEVERING it to stop the pain. From what the expert told me, the sheathe of it is damaged progressively.
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Hmmm. Yes, definitely get advice before considering it then. I have a cyst on my brain damaging nerves to my eye & ear & the trigeminal nerve as well as epilepsy but it comes in episodes and I find cefaly makes them pass off and if used regularly, reduces incidences generally.
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Fwiw, were I in your situation, I would make *exactly* the same choice. Quality of life matters enormously.
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You are an absolute joy to follow. Thank you. This is me on every thread. Even when we have points of disagreement. You ARE what it means to be a strong, intelligent woman.pic.twitter.com/jk1tkVON7Q
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100% in agreement.
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Your neurologist is irresponsible for attempting to substitute their own (moralistic?) preferences for your well-reasoned & well-informed argument about quality of life.
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