Fitbit charged. Just said I'll have to get up as it can't record any activity while I'm lying on the bed leading the husband to be very rude
Still no. I have one neurologist & a neurosurgeon who accept it's the cyst but don't wanna mess with it & one neurologists who says it isn't
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Well, how lovely. I would suggest finding one that has done these more often. And is willing. But I suspect that you did. -
Yes, there's a whole network of sufferers who share details of neurosurgeons & neurologists who are helpful.
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For a while I was desperate but now symptoms are better so I'm leaving it. My studies show me abt 1 in 10 who have surgery die.
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They do?!
that's high. Big risk. Yours doesn't grow anymore? -
No. Doesn't seem to have shrunk either but something's got better gradually. Maybe nerve damage repairing/replacing?
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The brain has shown to adapt & grow cells/structures. Possible. Important is that if it doesn't grow, it's high risk to remove & you feel
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better, one should not mess with a "good" thing. Fixing pain is just my reflex. Must be a mother thing.


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No, I wouldn't risk it now. If the awful pain came back or the seizures got frequent again, I'd make fuss.
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Well... that just sucks then.
But you seemed so much happier when you slept well.