My fitbit thingy has arrived. I've synced it with one thing & now all my technology is talking to me about it. I am a bemused Luddite.
They remove them routinely in the US but not here. There's always some risk with cutting through the meninges.
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True. Depending on where it's located, there are serious risks. Wondered if feeling that bad would be worth the risk though.
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I spent a lot of time & money compiling studies showing that ppl with cysts where mine is had exactly same symptoms & surgery stopped them.
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Still no. I have one neurologist & a neurosurgeon who accept it's the cyst but don't wanna mess with it & one neurologists who says it isn't
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Well, how lovely. I would suggest finding one that has done these more often. And is willing. But I suspect that you did. -
Yes, there's a whole network of sufferers who share details of neurosurgeons & neurologists who are helpful.
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For a while I was desperate but now symptoms are better so I'm leaving it. My studies show me abt 1 in 10 who have surgery die.
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They do?!
that's high. Big risk. Yours doesn't grow anymore? -
No. Doesn't seem to have shrunk either but something's got better gradually. Maybe nerve damage repairing/replacing?
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Well... that just sucks then.
But you seemed so much happier when you slept well.