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Pleased to attend the launch of the Rare Voices Action Plan in Canberra this morning. The Morrison Government will provide up to $3.3 million for activities to implement the first National Strategic Action Plan for Rare Diseases.pic.twitter.com/dw6lK4dJSk
The Action Plan will increase awareness and promote earlier, more accurate diagnosis and treatment for around two million Australians suffering from rare diseases.https://www.heraldsun.com.au/news/victoria/33m-funding-boost-for-rare-disease-research/news-story/298a9cb5889b76a6bfc44ff7985fe335 …
So just another way to channel masses of donor $'s into 'unknown' donor pockets hey?
Congratulations @GregHuntMP @RareVoices on behalf of all those living with rare lung diseases - @Lungfoundation will work hard to support the implementation of recommendations for people with are parents of children with rare lung disease #IPF #chILD #PCD #RareDiseaseDay
Thank you for your support for people living with #RareDiseases in Australia. We are glad people living with #Sicklecelldisease will benefit from this initiative. Thank you @RareVoices for your hard work on this.
Meanwhile smokers are being left behind, please take a moment to re-consider THR https://www.clivebates.com/documents/ErkuUKAusNZ2020.pdf …
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