Tweetovi
- Tweetovi, trenutna stranica.
- Tweetovi i odgovori
- Medijski sadržaj
Blokirali ste korisnika/cu @GlobalGenes
Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @GlobalGenes
-
Prikvačeni tweet
With a new year comes new opportunities. Our CEO, Kimberly Haugstad, is excited to kick-off a new decade in
#raredisease.https://globalgenes.org/2020/01/07/happy-new-year-from-kimberly-haugstad/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"This novel approach has the potential to provide significant benefit on top of currently available therapies." New therapy sotatercept shows promise in a developing drug trial that looks to treat
#raredisease pulmonary arterial hypertension (PAH)."http://ow.ly/vUFe50yaDPSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tomorrow is the start of our final
#DataDIY seminar. Join us to hear from experts at@awscloud@bensbutler@VicCondron You can access our previous sessions and download our workbooks on our website.#CareABoutRarehttps://globalgenes.org/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Who will be in Houston next week? If you can't make it, be sure to catch our livestream, and check back in here, where we'll also be live tweeting our tuesday
#DataDIY session.#raredisease https://datadiyworkshop4.mediasiteservices.com/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Quench Bio hopes to develop new therapies for serious and rare inflammatory diseases by targeting a family of protiens known as gasdermin.
#raredisease#CareAboutRarehttp://ow.ly/YEk650yaDbzHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“Until today, there were no treatment options specifically for patients with epithelioid sarcoma... The approval of Tazverik provides a treatment option that specifically targets this disease.”
@US_FDA#raredisease#CareAboutRarehttp://ow.ly/tyoT50y9GlLHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Encouraging results seen with drug therapies combating type 1 spinal muscular atrophy.
#raredisease#CareAboutRarehttp://ow.ly/pHDy50y9GkVHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#WRDD2020 is quickly approaching, what are your plans on the rarest day of the year? Find an event near you on our events hub, or share your own.#CareAboutRarehttps://globalgenes.org/events-hub/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
There's still time to register for
#DataDIY next week in Houston! Don't miss out on this opportunity to grow your organization through smart data usage.#rarediseasehttps://globalgenes.org/event/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Dror Bashan, CEO of Protalix Biotherapeutics, comes on our
#RARECast to speak about the company's efforts in pursuing therapies for unmet medical needs for diseases that include Fabry disease, cystic fibrosis, and other inflammatory diseases.http://ow.ly/pGRW50y7c1jHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“Tepezza is a much-needed breakthrough for a community of people who have historically had to struggle in pain as their symptoms progress." The first ever therapy for thyroid eye disease, Tepezza, has been approved by the
@US_FDA#rarediseasehttp://ow.ly/CFj750y6uBjHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Missed our webinar on Creating an Awareness Day? Watch back our recording for tips elevating on your next event.
#rarediseasehttp://ow.ly/524850y6uGuHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We can't wait to see everyone at our fourth
#DataDIY event in Houston! Can't make it? Register for our livestream! https://datadiyworkshop4.mediasiteservices.com/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“Based on preclinical data, we believe that GTX-102 offers tremendous promise and may one day provide patients with a potentially transformative therapeutic option.” Camille Bedrosian, has high hopes for potential drug treatment for Angelman syndrome.https://globalgenes.org/2020/01/16/fda-clears-genetx-and-ultragenyx-to-begin-angelman-syndrome-trial/ …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Global Genes proslijedio/la je Tweet
Caroline Harding & Nicole Boice are powerhouses in the genetic and rare disease space. For both, a very personal why saw them switch their respective high profile careers for a life of advocacy. Click here: http://bit.ly/2TkCVeA
#RareDisease#PatientAdvocacypic.twitter.com/8oRRLlfytS
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Our
#DataDIY event, Becoming a Data-Centric Community is one week away! If you can't make it to Houston, you can livestream the event here: https://datadiyworkshop4.mediasiteservices.com/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"We are still learning. The science is still evolving as is the medical knowledge... There's great hope when you look at the rare disease community." RARE Leader Eric Cole has taken advocacy for his son's disease, Dandy-Walker syndrome, into his own hands.http://ow.ly/4PQR50y4DuH
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"Patients can play a heroic role in drug development, particularly in rare disease, making the rare real for the next generation.” CEO of Raremark Tim Davis comments on his hopes for the future of
#raredisease research as he steps into his new role.https://globalgenes.org/2020/01/16/raremark-expands-leadership-team/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Happy friday! We're gearing up for World Rare Disease Day with with our Blue Denim Genes Ribbons. Order yours by February 21 to get them in time for
#WRDDhttps://globalgenes.org/denim-ribbons/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Mirum Pharmaceuticals, one of our Corporate Alliance members, is one step closer to approval for for a drug intended to treat Alagille syndrome.
#raredisease@biospace@mirumpharmahttps://www.biospace.com/article/releases/mirum-pharmaceuticals-completes-successful-pre-nda-meeting-with-fda-for-maralixibat/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"Our strategy is to get involved in as many research projects as possible-because even if we don’t get to that point of having a cure yet, we want to make sure that the kids have as high of a quality of life as possible. That’s the most important thing."http://ow.ly/Hwye50xYGx2
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.