Erin Gilmer, esq. - Health is a Human Right

@GilmerHealthLaw

Disabled attorney focused on health law & policy - Disability, Rx Drug Costs, Poverty/SDOH, Health Tech, HIPAA, Trauma/MH Research, & more. (No legal advice)

Denver, CO
Vrijeme pridruživanja: travanj 2012.

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  1. Prikvačeni tweet

    Here's what you should know about , particularly the common issues patients face getting records, but also including issues with communication and how to report violations.

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  2. There's a lot of misinformation out there about , often perpetuated by terrible reporting, poor public education, lack of accurate training, lack of enforcement, and businesses who prey on the uninformed only seeing dollar signs.

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  3. And this all comes to a head with issues of interoperability (sharing your info) as businesses with apps and services promising easy access to your records in a "-compliant" way are also weighing in (and not necessarily to the benefit of patients).

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  4. Health and Human services has been exploring whether to change or clarify rules on issues of privacy. Comments submitted may reshape HIPAA in substantial ways.

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  5. Whether should be expanded to cover more than doctors, insurers, clearing houses and business associates, has long been a debate and it's increasingly more relevant.

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  6. isn't about frustrating restrictions & red tape, it's really about trust. It's trust through privacy so patients can talking to doctors about anything and through ensuring records are accurate & accessible when they're needed so patients get care.

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  8. I love Elliot and Kennedy more than I can express.

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  9. The things I want to say but can't. The things I wish I could write but can't. Even if you knew it all, it wouldn't matter. None of it would or will. No matter how hard you listen, you won't be able to hear or understand.

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  10. None of this had to be. None of this has to be.

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  11. Not ok to lie to patients. Not ok. None of what is going on is ok. How many times do I have to say it?

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  12. Things are going awry and it's not ok. I don't need this. I am barely breathing.

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  13. I think I'm headed toward another - I told you something was wrong and you didn't believe me - scenario.

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  14. Recall that the Oversight Committee asked earlier this year whether Gilead's donations are really about generosity or the non-enforcement of government patents on PrEP

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  15. 4. pro 2019.

    • “Donated PrEP” while the taxpayer funded the research and development to create PrEP. • “Donated PrEP” so can withdraw paying taxes off their annual $22 billion dollar revenue. • “Donated PrEP” so only 200,000 uninsured can obtain “free” PrEP.

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  16. 4. pro 2019.
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  18. A Safe Place to Land

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  19. None of it is ok. And I just want it to all stop.

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  20. You do not need to be receiving SSI or SSDI to apply for a disability discharge of federal student loans

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