Dumb question- what would it take to have a large, centralized national healthcare database in the US that we could use to carry out massive epidemiological investigations on?
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Replying to @ENirenberg
You would need a national law or policy around every single doctor's office and health system submitting said data to a central database, with thousands of specific standards for which data is submitted in what format when and how. Or a national health system.
1 reply 0 retweets 14 likes -
Replying to @grahamwalker @ENirenberg
Not necessarily. To have a reasonable national database, you could get all insurers to send deidentified info with a secret linkage key to a central database. This wouldn't capture all events, but would be enough for most epi analyses
5 replies 0 retweets 9 likes -
Replying to @GidMK @ENirenberg
Sure — but what I mean is you need massive standards on how thousands of pieces of data are submitted. Blood pressure. Okay, is it the average blood pressure? The best? The worst? Do you include or exclude patients with pre-eclampsia? Is it just outpatient? Or also inpatient? etc
2 replies 0 retweets 0 likes
In this context, you wouldn't be extracting that sort of data at all - ICD codes and demographics give you a lot of info
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