The datasets I work with are only deidentifiable to a point. You can often reidentify people with a reasonable degree of accuracy once you've got 200+ fields of information on them
I do think there's a very real disconnect between the ambitions of data sharing and the expectations of someone whose data is being used in some of these studies. They might consent to have their information used in the study, but sharing it widely is another thing
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TG I only do research on molecules and they don't have to consent .....
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lucky you. We have to obtain consent from every ethics committee / IRB involved. In one German-wide study we had to ask 49 boards for approval
ok, as soon as the one responsible for the PI's site approves the others usually follow, but it's still paperwork. - Show replies
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