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GidMK's profile
Health Nerd
Health Nerd
Health Nerd
Verified account
@GidMK

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Health NerdVerified account

@GidMK

Epidemiologist. Writer (Guardian, Observer etc). "Well known research trouble-maker". PhDing at @UoW Host of @senscipod Email gidmk.healthnerd@gmail.com he/him

Sydney, New South Wales
theguardian.com/profile/gideon…
Joined November 2015

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    1. Karen Price AZ X2‏ @brookmanknight 29 Jul 2019

      Karen Price AZ X2 Retweeted Ewen McPhee  🇦🇺 👨‍👩‍👧‍👦 🇩🇰 🇺🇸

      This is BIG. Patients we are trying to protect your data but the race for data mining like gold mining is a business and compliance bonanza for many. Complain loudly because we support you. ❤️#yourGP.https://twitter.com/Fly_texan/status/1155762629933060096 …

      Karen Price AZ X2 added,

      Ewen McPhee  🇦🇺 👨‍👩‍👧‍👦 🇩🇰 🇺🇸 @Fly_texan
      Medicare data used to recruit people with bipolar for research Patients never consented to this, their GPs & Specialists never consented to this Immeasurable damage done to privacy & trust @ACRRM @RACGP @RACGPPresident @amapresident @RANZCP https://www.smh.com.au/healthcare/medicare-data-used-to-recruit-people-with-bipolar-for-research-20190722-p529k9.html … via @smh
      4 replies 41 retweets 63 likes
    2. Ewen McPhee  🇦🇺 👨‍👩‍👧‍👦 🇩🇰 🇺🇸‏ @Fly_texan 29 Jul 2019
      Replying to @brookmanknight

      I mean What the Heck! Was that Ethics Committee Thinking 💭 “Let’s just reverse identify data and tag 50,000 Australians to it, based on Prescriptions, without knowledge or consent of Patients and their treating Doctor” No biggy, Right!

      6 replies 12 retweets 30 likes
    3. Trent  💊 🆔‏ @trentyarwood 29 Jul 2019
      Replying to @Fly_texan @croakeyblog @brookmanknight

      The info sheet says it was the Dept Human Services ethics cttee that approved it. But to be honest, I'm more worried about the other Medicare based linkage news from today

      4 replies 1 retweet 8 likes
    4. Health Nerd‏Verified account @GidMK 29 Jul 2019
      Replying to @trentyarwood @Fly_texan and

      I'm not sure why everyone's saying linkage in reference to the PBS data - doesn't the DoHS have the full identified PBS data? I've never worked with the dataset but that was my (limited) understanding

      1 reply 1 retweet 0 likes
    5. Felicity Nelson‏ @frogsandstars 29 Jul 2019
      Replying to @GidMK @trentyarwood and

      Yes and fully identified MBS data. It's called linked when you put the MBS & PBS datasets together

      2 replies 1 retweet 4 likes
    6. Health Nerd‏Verified account @GidMK 29 Jul 2019
      Replying to @frogsandstars @trentyarwood and

      Did they do that here? I thought it was just sending letters based on subscription information

      2 replies 0 retweets 0 likes
    7. Trent  💊 🆔‏ @trentyarwood 29 Jul 2019
      Replying to @GidMK @frogsandstars and

      Trent  💊 🆔 Retweeted Daniel Reeders  🏳️‍⚧️

      No, you're right but Daniel lists the problems here @engagedpractxhttps://twitter.com/engagedpractx/status/1155805417772945410 …

      Trent  💊 🆔 added,

      Daniel Reeders  🏳️‍⚧️ @engagedpractx
      Medicare sending a letter to invite people to take part in a survey — fine. The problem is the letter identifying the recipient as having taken lithium and being eligible for a study of bipolar. People’s partners, families, even flatmates open their mail.
      Show this thread
      1 reply 0 retweets 3 likes
      Health Nerd‏Verified account @GidMK 29 Jul 2019
      Replying to @trentyarwood @frogsandstars and

      Oh no, don't get me wrong it's an enormous issue. We looked into a similar thing for diabetes, and were told that we'd have to use vague terminology like "medical test results" rather than HbA1c to avoid that sort of issue. Just wondering about everyone using the term linkage

      10:25 PM - 29 Jul 2019
      • 4 Likes
      • Michael Rice 🐀💧Arianrhod 💧🐀 Daniel Reeders 🏳️‍⚧️ Felicity Nelson
      2 replies 0 retweets 4 likes
        1. Felicity Nelson‏ @frogsandstars 29 Jul 2019
          Replying to @GidMK @trentyarwood and

          Really? That's interesting.

          0 replies 0 retweets 0 likes
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        2. Daniel Reeders  🏳️‍⚧️‏ @engagedpractx 29 Jul 2019
          Replying to @GidMK @trentyarwood and

          They’re using the term linkage because they want to use this issue to motivate people to care about data privacy. And as I keep saying, the issue isn’t the data, here, it’s the disclosure.

          1 reply 0 retweets 5 likes
        3. Trent  💊 🆔‏ @trentyarwood 29 Jul 2019
          Replying to @engagedpractx @GidMK and

          I'm trying not to use linkage about this story on particular. But isn't it just a different facet of the same risk?

          0 replies 0 retweets 0 likes
        4. End of conversation

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