Our latest study: national survey shows discrepancy in self-reported (8.4%) versus formally diagnosed (3.4%) #endometriosis in the Australian population, with wide variation between states (18.4% in SA)https://bmcresnotes.biomedcentral.com/articles/10.1186/s13104-019-4114-6 …
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Replying to @wardlejon
Interesting that there's no sociodemographic associations. Nice study!
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Replying to @GidMK
I've always suspected the sociodemographic associations we were taught in endometriosis (i.e. higher SES, whiter) had more to do with expense, access & effort required for formal diagnosis. It's an interesting condition - significant under- & over-diagnosis prob both present
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Replying to @wardlejon
Yes that's actually what I would've expected - an increase in perceived incidence due to better access to diagnosis. Maybe the self-report is negating that association?
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Replying to @GidMK
I'd suspect self-report is still largely directed by access to health care (i.e. GP or other practitioner says "your symptoms are consistent with endo, the only way to confirm is via laparoscopy, but we'll try treatment/management anyway"... but at this stage it's all guesses
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I was thinking more that self-report may be skewed by people self- diagnosing due to increased awareness of endo ok recent years
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