Time for the second episode of #afflicted
Follow along if for my thread of rage and sorrow
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Now we are back to ME/CFS man Apparently, he's left his room for the first time in 2 years
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Not as much quackery this episode for him, although some odd oxymorons in his disease state. He's super-duper sensitive to light, but opening the curtains is totally fine? Very strange
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Back to 12 diagnosis lady. Going through a whole bunch of nonsense tests She had candida overgrowth (not a thing), coeliac (not formally diagnosed), mold overgrowth (not a thing)
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Another important point: most of these people have simply put their faith in quacks They spend enormous sums on these treatments because someone who knows nothing at all about the issue has convinced them they work
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Oh hey she's seeing the 'functional neurologist', Dr. Zielinski He is actually a chiropractor This is absolutely horrifying
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He's manipulating her neck, a treatment that has serious side-effects and virtually no known benefits THIS IS DANGEROUS AND ABSURD
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Back to the mold woman, her brother has come to help but he has to be decontaminated first This is really, really sad
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Oh man they're using an ozone machine to 'decontaminate' the car and clothes Again, expensive, and a total waste of time
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Back to ME dude, and he's being treated by a GP who is into "integrative" and "functional" medicine, both buzzwords for alternative medicine This will be, um, interesting
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Apparently the 12 diagnosis woman believes "every" doctor who she has spoken to I am not surprised It sounds so frustrating
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"ME/CFS is a group of symptoms" Exactly The causes are just largely unknown
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This means that the TREATMENTS - pretty much all of them - are almost totally unproven Doesn't mean that they are necessarily worthless, but they do not have evidence regardless
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And that wraps up episode 2 of
#afflicted Some closing thoughtsShow this thread -
Most of these people are suffering. They are really, truly unwell They have also been lied to
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Even the smartest people can be conned It is sad, but happens all too often
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End of conversation
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