After reading this thread, someone emailed me w/a Q.
She wanted to know about good informal (or formal) channels for cancer patients to report alternative interventions that have been successful for them. Any ideas?
cc @gorskon @VinayPrasadMD @RodMakeKidsBald @FayeJohnsohttps://twitter.com/AlanLevinovitz/status/1003284246100881409 …
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Completely agree. i have three 'long term cures' of patients who had by all info should have 0% survival (relapsed aggressive pediatric tumors - GBM x1, Neuroblastoma x2) and all that those 3 patients had was a wish trip. so Make-a-Wish/Children's Wish trips cure cancer. ;-)
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Making *these* kinds of case reports public--telling these stories as a kind of antidote to miracle cure stories--would be really, really helpful.
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Exactly, some people have mutations or what ever that we just don’t know about, there are no miracle cures just undiscovered science. We must be VERY careful how we discuss.
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Agreed. I remember seeing a case report of a woman surviving for 60 months with mesothelioma using herbal remedies and homeopathy. It was reported on as a miracle, but it could just have easily been luck of the draw
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This is the problem with a registry - there's no denominator. But that's not the function. I've been studying CAM for 19 years, next miracle cure is the first. Let's see if it happens, then determine if there was causation.
Thanks. Twitter will use this to make your timeline better. UndoUndo
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