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GidMK's profile
Health Nerd
Health Nerd
Health Nerd
Verified account
@GidMK

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Health NerdVerified account

@GidMK

Epidemiologist. Writer (Guardian, Observer etc). "Well known research trouble-maker". PhDing at @UoW Host of @senscipod Email gidmk.healthnerd@gmail.com he/him

Sydney, New South Wales
theguardian.com/profile/gideon…
Joined November 2015

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    1. Alan Levinovitz‏Verified account @AlanLevinovitz 3 Jun 2018

      Alan Levinovitz Retweeted Alan Levinovitz

      After reading this thread, someone emailed me w/a Q. She wanted to know about good informal (or formal) channels for cancer patients to report alternative interventions that have been successful for them. Any ideas? cc @gorskon @VinayPrasadMD @RodMakeKidsBald @FayeJohnsohttps://twitter.com/AlanLevinovitz/status/1003284246100881409 …

      Alan Levinovitz added,

      Alan LevinovitzVerified account @AlanLevinovitz
      A thread inspired by this pediatric oncologist's comment on the keto diet. I have spent the last 6 months researching alternative cancer therapies: the people who endorse them, the docs who are skeptical, the patients who want hope. https://twitter.com/RodMakeKidsBald/status/1003046155863937024 …
      Show this thread
      4 replies 0 retweets 4 likes
    2. Matthew Brignall, ND‏ @drbrignall 3 Jun 2018
      Replying to @AlanLevinovitz @gorskon and

      I would love to see a registry where these sorts of reports could be verified and recorded. I've proposed this for years, but who would pay for it? Rich people of Twitter - I'd trade a toe to make this my next career.

      2 replies 0 retweets 3 likes
    3. Alan Levinovitz‏Verified account @AlanLevinovitz 3 Jun 2018
      Replying to @drbrignall @gorskon and

      It would be extremely useful--especially if oncologists registered and submitted opinions at various points during the treatment.

      2 replies 0 retweets 3 likes
    4. Matthew Brignall, ND‏ @drbrignall 3 Jun 2018
      Replying to @AlanLevinovitz @gorskon and

      Sure. There would have to be some sort of verification process - biopsy results, scans, chart review, etc. There is kind of a precedent for this idea: http://www.nwcr.ws/ 

      1 reply 0 retweets 1 like
    5. Rod Rassekh‏ @RodMakeKidsBald 3 Jun 2018
      Replying to @drbrignall @AlanLevinovitz and

      would be interesting- agree that it has to be verified info. Biggest limitation is that many are using these in conjunction with conventional treatments- so hard to tease out what benefit is complementary medicine & what is the conventional medicine. Funding for RCTs needed.

      3 replies 0 retweets 8 likes
      Health Nerd‏Verified account @GidMK 3 Jun 2018
      Replying to @RodMakeKidsBald @drbrignall and

      Especially considering the evidence that ~1% of 'terminal' patients survive to 5 years regardless of treatment. It's one of my main concerns about cancer case-reports

      6:09 PM - 3 Jun 2018
      • 5 Likes
      • tpovio ... Jess Huntley Mike Williams 🇺🇲 Alan Levinovitz
      3 replies 0 retweets 5 likes
        1. New conversation
        2. Rod Rassekh‏ @RodMakeKidsBald 3 Jun 2018
          Replying to @GidMK @drbrignall and

          Completely agree. i have three 'long term cures' of patients who had by all info should have 0% survival (relapsed aggressive pediatric tumors - GBM x1, Neuroblastoma x2) and all that those 3 patients had was a wish trip. so Make-a-Wish/Children's Wish trips cure cancer. ;-)

          3 replies 5 retweets 27 likes
        3. Alan Levinovitz‏Verified account @AlanLevinovitz 3 Jun 2018
          Replying to @RodMakeKidsBald @GidMK and

          Making *these* kinds of case reports public--telling these stories as a kind of antidote to miracle cure stories--would be really, really helpful.

          1 reply 0 retweets 5 likes
        4. Show replies
        1. New conversation
        2. Jennifer Gunter‏Verified account @DrJenGunter 3 Jun 2018
          Replying to @GidMK @RodMakeKidsBald and

          Exactly, some people have mutations or what ever that we just don’t know about, there are no miracle cures just undiscovered science. We must be VERY careful how we discuss.

          1 reply 2 retweets 9 likes
        3. Health Nerd‏Verified account @GidMK 3 Jun 2018
          Replying to @DrJenGunter @RodMakeKidsBald and

          Agreed. I remember seeing a case report of a woman surviving for 60 months with mesothelioma using herbal remedies and homeopathy. It was reported on as a miracle, but it could just have easily been luck of the draw

          0 replies 0 retweets 2 likes
        4. End of conversation
        1. Matthew Brignall, ND‏ @drbrignall 3 Jun 2018
          Replying to @GidMK @RodMakeKidsBald and

          This is the problem with a registry - there's no denominator. But that's not the function. I've been studying CAM for 19 years, next miracle cure is the first. Let's see if it happens, then determine if there was causation.

          0 replies 0 retweets 0 likes
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