Genetic Alliance

@GeneticAlliance

nonprofit network transforming health through genetics. openness in health systems. advocacy. empowerment. education. dialogue. informed decisions. access.

Washington, D.C.
Vrijeme pridruživanja: kolovoz 2008.

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  1. Prikvačeni tweet
    22. sij 2019.

    We’re partnering w/ , the 1st community-owned health & data platform dedicated to accelerating medical breakthroughs! Together, we're creating a novel platform w/ more resources to manage while powering disease research at scale!

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  2. 17. sij

    Express Your Support for a Strong National Open Access Policy

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  3. proslijedio/la je Tweet
    13. sij

    What?! We don't already have immediate, free access to tax-payer supported research results? Join us by signing your company or organization on to our letter: For more information visit:

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  4. 14. sij

    Express Your Support for a Strong National Open Access Policy!

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  5. proslijedio/la je Tweet
    14. sij

    for all - we need access to all research results funded by taxpayer dollars. Open access means faster discoveries and faster treatments. Join us in supporting this today! Companies and organizations, sign on to our letter: Or email

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  6. 7. sij

    US Senators introduced a bill to enable States to provide access to whole genome sequencing clinical services for certain undiagnosed children. Thank you, and for your leadership on this important legislation.

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  7. 9. pro 2019.
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  8. 15. stu 2019.

    Register to join in person or via webcast.

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  9. 25. lis 2019.
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  10. 21. lis 2019.

    Thank you and for highlighting this important bill at last week’s markup! Your leadership can help us end the Diagnostic Odyssey for kids with genetic disease. Full remarks here:

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  11. 21. lis 2019.

    We are eager to see this bill signed into law so a first-line diagnostics test can be offered to families, regardless of income. Thank you for your leadership on this on this important legislation!

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  12. proslijedio/la je Tweet
    30. ruj 2019.

    It's the last day of Newborn Screening Awareness Month! We're closing out the end of this month with a Facebook Live event with , our Director of Baby's First Test! Tune in at 12:30 pm ET TODAY!

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  13. proslijedio/la je Tweet
    18. ruj 2019.

    Join us for an educational webinar on September 25th at 2PM EDT! Interested in learning about family experiences regarding their first contact they received about an out-of-range result? Register today:

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  14. proslijedio/la je Tweet
    17. ruj 2019.

    Thanks for sharing, ! ACT Sheets can be a great resource for . also links out to the ACT Sheets on our condition pages.

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  15. proslijedio/la je Tweet
    17. ruj 2019.

    Newborn screening is so important! Each year, 12,500 babies are born with one of the conditions included in state panels. Education is critical to ensuring that families are supported and empowered throughout the process

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  16. proslijedio/la je Tweet
    17. ruj 2019.

    Join our Twitter Chat today at 2pm EST with and ! We can't wait to be a part of an informative and engaging discussion about ! Follow along and join the conversation by using !

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  17. 9. ruj 2019.

    Attend a Free Workshop to explore the current landscape of consumer genomics and implications for how genetic test information is used or may be used in research and clinical care. Register:

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  18. 5. ruj 2019.

    Recording is now available! Listen to this webinar to learn about online resources available to put credible information sourced from the broader healthcare, advocacy and support community into one place.

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  19. 3. ruj 2019.
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  20. 26. kol 2019.
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  21. 19. kol 2019.

    Register to join a free webinar focused on highlighting educational resources and the ways that individuals, caregivers, parents and families utilize these tools.

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