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Prikvačeni tweet
We’re partnering w/
@LunaDNA_, the 1st community-owned health &#DNA data platform dedicated to accelerating medical breakthroughs! Together, we're creating a novel platform w/ more resources to manage#health while powering disease research at scale! http://peer.lunadna.com pic.twitter.com/ePa01RKTnn
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Express Your Support for a Strong National Open Access Policy
#OAintheUSA http://www.geneticalliance.org/open-access-policy …pic.twitter.com/VLSkTeO68J
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Genetic Alliance proslijedio/la je Tweet
What?! We don't already have immediate, free access to tax-payer supported research results? Join us by signing your company or organization on to our letter: http://ow.ly/dbqZ50xUtUN For more information visit: http://geneticalliance.org/open-access-policy …
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Express Your Support for a Strong National Open Access Policy! http://www.geneticalliance.org/open-access-policy …pic.twitter.com/320MlZnJyK
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Genetic Alliance proslijedio/la je Tweet
#OpenAcess for all - we need access to all research results funded by taxpayer dollars. Open access means faster discoveries and faster treatments. Join us in supporting this today! Companies and organizations, sign on to our letter: http://ow.ly/vAU350xUCTA Or email@WhiteHouseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
US Senators introduced a bill to enable States to provide access to whole genome sequencing clinical services for certain undiagnosed children. Thank you,
@SenatorCollins@SenatorMenendez@SenDougJones and@SenMcSallyAZ for your leadership on this important legislation.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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Register to join in person or via webcast.https://twitter.com/NASEM_Health/status/1193634633709182982 …
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Thank you
@RepShimkus and@RepScottPeters for highlighting this important bill at last week’s markup! Your leadership can help us end the Diagnostic Odyssey for kids with genetic disease. Full remarks here:https://www.youtube.com/watch?v=_X52_rva1Nc&feature=youtu.be …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are eager to see this bill signed into law so a first-line diagnostics test can be offered to families, regardless of income. Thank you for your leadership on this on this important legislation!https://twitter.com/RepScottPeters/status/1185326134180728832 …
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Genetic Alliance proslijedio/la je Tweet
It's the last day of Newborn Screening Awareness Month! We're closing out the end of this month with a Facebook Live event with
@TashUP, our Director of Baby's First Test! Tune in at 12:30 pm ET TODAY!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Genetic Alliance proslijedio/la je Tweet
Join us for an educational webinar on September 25th at 2PM EDT! Interested in learning about family experiences regarding their first contact they received about an out-of-range
#newbornscreening result? Register today: http://bit.ly/2kHKCgj#2019NBSpic.twitter.com/nSgHxq38z9
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Genetic Alliance proslijedio/la je Tweet
Thanks for sharing,
@NCCRCG! ACT Sheets can be a great resource for#HCPs. http://BabysFirstTest.org also links out to the ACT Sheets on our#newbornscreening condition pages.#2019NBShttps://twitter.com/NCCRCG/status/1174029832415600650 …
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Genetic Alliance proslijedio/la je Tweet
Newborn screening is so important! Each year, 12,500 babies are born with one of the conditions included in state
#newbornscreening panels. Education is critical to ensuring that families are supported and empowered throughout the process#2019NBSpic.twitter.com/tTuxkepOyS
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Genetic Alliance proslijedio/la je Tweet
Join our Twitter Chat today at 2pm EST with
@MarchofDimes and@TexasChildrens! We can't wait to be a part of an informative and engaging discussion about#newbornscreening! Follow along and join the conversation by using#2019NBS!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Attend a Free Workshop to explore the current landscape of consumer genomics and implications for how genetic test information is used or may be used in research and clinical care.
#GenomicsRT Register: http://nationalacademies.org/hmd/Activities/Research/GenomicBasedResearch/2019-OCT-29.aspx …pic.twitter.com/O3J6lJqTHB
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Recording is now available! Listen to this webinar to learn about online resources available to put credible information sourced from the broader healthcare, advocacy and support community into one place. https://www.youtube.com/watch?v=U5z3mnXibVg …pic.twitter.com/tNIVnWF1ue
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Help raise awareness! Visit the Baby's First Test website for newborn screening facts, resources, and live events: https://www.babysfirsttest.org/newborn-screening/2019-newborn-screening-awareness-month?fbclid=IwAR1q1bktojUPS7ZRN01u1gTWVvNQ0OOCv-l3k5nMyMdLh9gvKcENVmdV5t4 …pic.twitter.com/2fmS0WLrht
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Don't miss a free webinar tomorrow highlighting advocacy tools to share with your community! Register here: https://mailchi.mp/geneticalliance/webinar-highlighting-advocacy-tools-to-share-with-your-community?e=3e7d9935f6&fbclid=IwAR35O9iC9J_TzzKmHj4QAyt60V4ZkVIjYV3Jf0nOJelmEtYyoZg6Dei-2bQ …pic.twitter.com/32msI503Rj
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Register to join a free webinar focused on highlighting educational resources and the ways that individuals, caregivers, parents and families utilize these tools. https://register.gotowebinar.com/register/2431111869300798467 …pic.twitter.com/9yJO1mcdRF
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