I still say jokingly "it's all in my head" 4 years on. Last year FND decided to take my sight hostage too. Monday, I saw a lovely guy who was positive about things I could do, the first I've had. Still no referral back to specialist though, there's nothing else to be done 
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I’m sorry to hear that, Laura. That must be terrifying. During the worst of my FND, I used to plead with my brain not to take my vision from me. It seemed to take everything else.
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I needed to see this today. Yesterday o was treated this was for my EDS. It was awful.
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It’s wrong for medical providers to treat patients in a way that devalues them. "First do no harm" is an essential mandate in medical education, but is violated every time a patient is treated with disrespect. You don’t deserve that.
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I'm sorry. We are here, standing with you. You are not alone
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Sadly it happens a lot, I’ve only ever come across 1 ER doc who knew of the condition and she was amazing - most say things like ‘what is it’ ‘well if it’s just in the head can’t you think yourself well’ luckily my ‘regular’ docs know about it and understand which is helpful x
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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