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There are as many different
#MyastheniaGravis experiences as there are people who live the spoonie life but even stories different from our own can make us feel less alone and give us hope. Just remember to "Live you illest life"!https://www.findmecure.com/blog/a-day-with-myasthenia-gravis-is-like-the-cliff-hanger-at-the-end-of-a-movie-interview-with-mg-blogger/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
#patientsEU2020 “my wife is my rock , without her I wouldn’t be here 1000% “ “I’d heard stories about partners leaving partners diagnosed with prostate cancer so I asked her why do stay with me ? Grace looked at me in THAT way - “I’m here to stay”#thepowerofthecaregiverpic.twitter.com/d1imZ8yTTs
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hair loss is one of the reasons many patients fear chemo. Far from finding a perfect solution, research is advancing innovative methods of prevention - the cooling cap among them. Learn more about
#ScalpCooling to know if it's a good option for you.https://www.findmecure.com/blog/preventing-hair-loss-in-chemo-3-scalp-cooling-treatments-you-should-know-about/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
The more we focus on the real-world patients’ obstacles and their patient journey, the fewer issues the
#drugdevelopment industry will face. Read my latest blog article on the hurdles in#patientrecruitment in#clinicaltrialshttps://bit.ly/2NSCrZGHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Diagnosed with
#MyastheniaGravis at age 5, Allison Foss is one of those rare MG patients with the MuSK antibody, the rarest kind of MG. Read her inspiring story of a patient and a patient advocate at@myastheniakc
https://bit.ly/37hW8Sx Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
An excellent article by Beth Harper. I fully agree that disruption is not coming from
#machinelearning and#blockchain. They are just the tools for achieving better KPIs in#clinicaltrials#patientrecruitment. The more we focus on…https://lnkd.in/gjVadfZ https://lnkd.in/gz74GKjHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#ClinicalTrials don't always test invasive treatment methods - sometimes the purpose of research is observation. We owe a lot of what we know about health to observational studies. Here's what they do.https://www.findmecure.com/blog/when-the-goal-is-observation-beyond-experimental-clinical-trials/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Essential questions about the use of real-world evidence in rare disease will be answered
#RWERareDiseases20 on 1-2 April in London. Our@SmileWithMaya will be there to talk about effective strategies, patients and real-world evidence. Ping her if you are around!https://twitter.com/SmileWithMaya/status/1217207189535776768 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
Who is going to be at
#realworldevidence 2020 in London?#clinicaltrials#patientcentricity#feasibility#patientsfirsthttps://lnkd.in/gEVCtkjHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Your MG diagnostic journey can take up to a few months. Know what to expect, what tests you can request and when to seek a second opinion
#MyastheniaGravishttps://www.findmecure.com/blog/myasthenia-gravis-diagnosis-5-methods-you-should-know/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
It has been a remarkable year of promise in
#medicalscience! It's all thanks to#clinicaltrials and all the researchers, patients and drug developers taking part in#research!https://bit.ly/2Fqx9zWHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
To welcome the new decade in
#NewYear2020 we recommend celebrating your achievements. That's what we did! Take a look at what 2019 had in store for our blog.
https://www.findmecure.com/blog/the-10-most-read-posts-on-the-blog-in-2019/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Don't let
#MyastheniaGravis stop you from enjoying a wonderful time with your loved ones. Here's how you can better deal with symptoms over the holidays.https://www.findmecure.com/blog/how-to-enjoy-the-holidays-despite-myasthenia-gravis/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
It was
#CharityMonday today and we raised more money than expected. Thanks to everyone who supported us and the Association of Children with Oncohematological Diseases.#givefirst#fightcancer#fundraisingpic.twitter.com/SeSzYvu0LD
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#UniversalHealthCoverage is the foundation upon which we can build a better tomorrow. As UN Secretary-General António Guterres reminds us, health is the driver of economic growth and social change.https://www.findmecure.com/blog/universal-health-coverage-accessible-affordable-people-centred-care/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
Thank you
#Commissioner@GabrielMariya for meeting with EBC & for acknowledging the growing need for support of#brainresearch to help improve the lives of the 179 million#Europeans living with#brain conditions! We look forward to continued collaboration with you & your team.https://twitter.com/GabrielMariya/status/1204433966964658177 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
If it feels like
#MyastheniaGravis has taken away all of life’s joy, we're here to give you some tips on beating#fatigue. It's far from a losing battle
https://www.findmecure.com/blog/5-ways-to-beat-fatigue-in-myasthenia-gravis/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Our friends at RareDiseaseGhana Initiative are embarking on a campaign to raise $35,000 to support the screening of 500 newborns in Ghana for more than 50 inherited disorders. Help them by donating, this can save a life!https://bit.ly/2qkksmz
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
FindMeCure proslijedio/la je Tweet
Today is the International Day of Persons with Disabilities. Over 1 billion people in the


experience some form of disability.
Let's celebrate diversity & promote the human rights of people with disability. #ADay4All! http://bit.ly/33rcEwB pic.twitter.com/QjlAuRLig3
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
No matter whether we celebrate or not,
#thanksgiving2019 is a great occasion to express our gratitude to all#patients#patientadvocate#clinicaltrials companies for the trust and support they provided us with. Stay healthy and enjoy life!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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