FND Hope International

@FNDHope

Our mission is to promote awareness, support affected individuals, and advance research for the prevention, treatment, and recovery of FND.

International
Joined August 2012
Born April 13

Tweets

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  1. 20 hours ago

    Do you know how common FND is? Become more Please retweet!!

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  2. Feb 1

    How great would it be to win this?! A great opportunity to explore FND research. What would be your research priority?

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  3. Feb 1

    Your voice is powerful. Your story is needed. You are important!

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  4. Jan 31

    Thank you we are an all-volunteer organization doing what we can to make the world a better place by.

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  5. Jan 30

    Don’t miss this great opportunity to become

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  6. Jan 29
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  7. Terminology for psychogenic non-epileptic seizures: Making the case for “functional seizures” What are your thoughts?

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  8. Congratulations on being part of this paper, led by Ali Asadi-Pooya "Part of the Global FND Movement" FND patients deserve respectful terminology!

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  9. Jan 24

    A case for consistent terminology, and why it is both reasonable and logical to drop the psychogenic term.

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  10. Jan 22

    Largely understudied until recently, presents a critical challenge to practitioners in and .

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  11. Jan 21

    awareness is crucial to avoid iatrogenic harm. High time doctors understand and offer positive diagnosis. The onus is on doctors and "Do No Harm" must come first. Harmful treatment is worse than no treatment!

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  12. Jan 23

    European Neuro Convention March 17th / 18th March FND Hope UK will be there raising awareness of at stand N364. If you want to know more about the & how to get free tickets

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  13. Jan 21

    Bradford/West Yorkshire FND Peer Support Group Friday 24th Jan 2020 at 13.00pm Come along and meet others dx with , meet new friends, support each other over a cuppa. Debra is looking forward to welcoming you to the group.

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  14. Jan 22
    Replying to and

    Wonderful booklet ,thank you. 😊

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  15. Jan 19

    Surprisingly common problem: people intubated for prolonged psychogenic attacks that are mistaken for status epilepticus. Results in iatrogenic injuries including vent-associated pneumonias and at least one documented death. We need education re functional neurological disorders.

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  16. Jan 19

    Thank you for bringing attention to the horrible “all in their head” stigma perpetuated by those who are not

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  17. Jan 18

    There are changes in brain function in FND as Charcot predicted in 1889. FND. Thanks and David Lapides for Neurology minute podcast, pt. 11

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  18. Using diffusion tensor imaging, Mass General researchers David Perez, MD, & Ibai Diez, PhD, identified white matter microstructural differences between 32 patients with functional neurological disorder & 36 healthy controls

    , , and 4 others
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  19. Jan 16

    Lezlee explains: "The day her life slipped right out from underneath me."

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  20. Jan 15

    Thanks and all patient-led organisations for your support. The fourth international FND meeting, and the first as our new society is Jun 14-16, 2020 Boston ,

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