extendGINA

@ExtendGina

Promoting convo's re:genetic discrimination, incl. steps beyond laws like the US Genetic Information Non-Discrimination Act (Account run by: )

Vrijeme pridruživanja: ožujak 2019.

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  1. 17. sij

    A lot of useful discussion kicked off in the replies to ’s tweet here...

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  2. proslijedio/la je Tweet

    A bill in Florida aims to ban life insurers from using genetic testing results to determine rates or coverage.

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  3. proslijedio/la je Tweet
    16. sij
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    14. sij

    This month very narrow changes to Illinois state law for genetic info privacy have taken effect (DTC companies cannot disclose to health or life insurers without written consent from consumer).

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    18. pro 2019.

    Check out a new article by and I recreating a 1992 survey of US insurance commissioners asking about regulation of life insurer use of genetic information in the Journal of Genetic Counseling.

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    18. stu 2019.

    Regulating Genetic Discrimination in the European Union -

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    19. stu 2019.

    Want to learn more after the genetic discrimination talk at ? Didn't attend but want to learn more? Thanks to for compiling this list of key thought leaders and resources for learning more.

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    7. stu 2019.
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    7. stu 2019.

    Full house today at the History of Genetic Discrimination: Reviewing our Past and Looking Toward the Future w/ & Vivian Ota Wang.

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  10. proslijedio/la je Tweet
    22. lis 2019.

    (Thread) Here’s my new preprint, with , on genetic privacy in genealogy databases that allow user uploads. (1/n)

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    As genetic testing becomes a staple of modernized medicine, can you be discriminated against for your DNA information?

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  12. proslijedio/la je Tweet
    6. kol 2019.

    New in : , , and on what the US can learn from peer countries on preventing genetic discrimination in life, disability, and long-term care insurance

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    7. kol 2019.

    NEW paper hot off the press! “It’s time for the US to become a country where patients aren’t afraid their genetic information may be used against them” Congrats to authors

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    23. srp 2019.

    . on the risks to the Genetic Information Nondiscrimination Act with attempts to overturn the ACA

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    22. srp 2019.

    Here's on how the effort to dismantle Obamacare could also wreak havoc on the world of genetic testing, which has revolutionized modern medicine:

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  16. 10. srp 2019.

    And some progress in Australia.. The insurance industry has adopted a ban on genetic discrimination for certain life and disability policies below given payout thresholds, with a planned review date, similar to the UK model.

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  17. 10. srp 2019.

    "Discriminating on genetic test results penalises individuals who are proactive about health. By contrast, those who remain uninformed of their risk are not penalised in the same way. " from new study on genetic discrimination out of Australia

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  18. proslijedio/la je Tweet
    21. lip 2019.

    Check out this article featuring me & commenting on rights for workers! It also includes a shout to my article on w/

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  19. proslijedio/la je Tweet
    12. lip 2019.

    This "article concludes that few, if any, applicable legal doctrines or enactments provide adequate protection or meaningful control to individuals over disclosures that may affect them" regarding genetic privacy:

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  20. proslijedio/la je Tweet
    5. lip 2019.

    Achievement for the evening: finding the genetic discrimination protection law of Mexico, passed in 2011: "Article 103 Bis 2. No one shall be subject to discrimination, violation of rights, freedoms or dignity due to their genetic characteristics."

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