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A lot of useful discussion kicked off in the replies to
@antonioregalado’s tweet here...https://twitter.com/antonioregalado/status/1217121001072398336 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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A bill in Florida aims to ban life insurers from using genetic testing results to determine rates or coverage.https://www.tampabay.com/opinion/2020/01/12/life-insurers-should-not-get-your-dna-chris-sprowls/ …
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Genetic Bias Law Has Worked Perfectly, or Maybe Not at Allhttps://news.bloomberglaw.com/daily-labor-report/genetic-bias-law-has-worked-perfectly-or-maybe-not-at-all …
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This month very narrow changes to Illinois state law for genetic info privacy have taken effect (DTC companies cannot disclose to health or life insurers without written consent from consumer).http://www.tinyurl.com/ruw522c
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Check out a new article by
@DexterG_Iowa and I recreating a 1992 survey of US insurance commissioners asking about regulation of life insurer use of genetic information in the Journal of Genetic Counseling.https://onlinelibrary.wiley.com/doi/full/10.1002/jgc4.1197 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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Regulating Genetic Discrimination in the European Union - http://mural.maynoothuniversity.ie/11716
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Want to learn more after the genetic discrimination talk at
#NSGC19? Didn't attend but want to learn more? Thanks to@tinakim for compiling this list of key thought leaders and resources for learning more.pic.twitter.com/xMOatUyehR
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Full house today at the History of Genetic Discrimination: Reviewing our Past and Looking Toward the Future w/
@laurahercher@tinakim & Vivian Ota Wang.#C12#NSGC19pic.twitter.com/GNqd2f5g0j
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(Thread) Here’s my new preprint, with
@Graham_Coop, on genetic privacy in genealogy databases that allow user uploads. (1/n)https://www.biorxiv.org/content/10.1101/798272v1 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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As genetic testing becomes a staple of modernized medicine, can you be discriminated against for your DNA information?pic.twitter.com/29lOG2eB9f
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New in
@NatureMedicine:@BelislePipon ,@EffyVayena ,@RobertCGreen and@CohenProf on what the US can learn from peer countries on preventing genetic discrimination in life, disability, and long-term care insurance http://rdcu.be/bNdL3Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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NEW
@NatureMedicine paper hot off the press! https://www.genomes2people.org/wp-content/uploads/2019/04/20190807_NatureMedicine_Belisle-Pipon_InsuranceDiscrimination.pdf … “It’s time for the US to become a country where patients aren’t afraid their genetic information may be used against them” Congrats to authors#JeanChristopheBelislePipon@EffyVayena@RobertCGreen@CohenProfpic.twitter.com/9yyoRO35eA
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@laurahercher on the risks to the Genetic Information Nondiscrimination Act with attempts to overturn the ACAhttps://www.buzzfeednews.com/article/laurahercher/kill-obamacare-turn-back-clock-aca-genetic-test …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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Here's
@laurahercher on how the effort to dismantle Obamacare could also wreak havoc on the world of genetic testing, which has revolutionized modern medicine:https://www.buzzfeednews.com/article/laurahercher/kill-obamacare-turn-back-clock-aca-genetic-test …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
And some progress in Australia.. The insurance industry has adopted a ban on genetic discrimination for certain life and disability policies below given payout thresholds, with a planned review date, similar to the UK model.https://www.smh.com.au/money/insurance/discrimination-on-genetic-testing-by-life-insurers-ends-20190701-p522wj.html …
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"Discriminating on genetic test results penalises individuals who are proactive about health. By contrast, those who remain uninformed of their risk are not penalised in the same way. " from new study on genetic discrimination out of Australia https://rdcu.be/bJExB
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Check out this
@USNewsMoney article featuring me &@CohenProf commenting on#genetic#privacy rights for workers! It also includes a shout to my@YaleLJournal article on#GINA w/@bradarehearthttps://money.usnews.com/careers/applying-for-a-job/articles/learn-your-genetic-privacy-workers-rights …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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This "article concludes that few, if any, applicable legal doctrines or enactments provide adequate protection or meaningful control to individuals over disclosures that may affect them" regarding genetic privacy: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3384321 …
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Achievement for the evening: finding the genetic discrimination protection law of Mexico, passed in 2011: "Article 103 Bis 2. No one shall be subject to discrimination, violation of rights, freedoms or dignity due to their genetic characteristics."
#gcchat http://www.diputados.gob.mx/LeyesBiblio/legis/reflxi/158_LGS_16nov11.doc …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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