.@EricTopol @NatureNews @wilbanks Agree w/all. Only patient should own their data @Sagebio holds data for Rkit so it is part of this problem
Stop the Privatization of Health Data http://www.nature.com/news/stop-the-privatization-of-health-data-1.20268 … our @NatureNews comment @wilbanks @Sagebio @Naturepic.twitter.com/B7dZHyTTwT
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@ZibdyHealth@EricTopol@NatureNews@Sagebio e.g. participants decide if they want to donate a copy broadly, which 75% choose to do -
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@wilbanks What happens if you find a blockbuster w/user data, do they get reach thru? can't do w/o data. -
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@EricTopol@NatureNews@Sagebio@wilbanks Do users understand $$ implications upfront? Patients who donate get highest cost drugs, fair? -
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@ZibdyHealth@EricTopol@NatureNews but a reach through model is something we’re looking at. still not sure how enforceable it is. -
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@wilbanks@EricTopol@NatureNews Should be easy not a rocket science. Data donors should get bigger piece. -
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@ZibdyHealth@EricTopol@NatureNews easy to write the contract. very difficult to enforce it effectively. especially in “open” context. -
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@wilbanks@EricTopol@NatureNews Agree! This is why you are pioneering this. - 2 more replies
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Be careful abt "donate data". Who monetizes this data for what? What is in it for the patient?
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Great job, per usual.
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Thanks Ernesto!
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@erictopol@naturenews@wilbanks@sagebio@nature disagree health data as ‘public good’ - first and foremost owned by individuals.Thanks. Twitter will use this to make your timeline better. Undo -
This would make
#Enlite a very dangerous device@EricTopol@NatureNews@wilbanks@Sagebio@nature@ScrippsSTSIpic.twitter.com/RdpANp8YGP
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