Thank you, @EricG1247
From one Lupus Warrior to another, I appreciate this with all my heart. Thank you for your support & for bringing awareness to Lupus. People still ask me, "How can you have Lupus, isn't that a woman's disease?" 5-10% of the 1.5M in America w/Lupus are men!https://twitter.com/EricG1247/status/1314714134123024384 …
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Breaks my heart to read this, Eric, thank you for sharing such personal details. People need to see and understand. Thank you. You are the consummate Lupus Warrior, I thank you for fighting for me.
For years I was struggling with depression because I thought my inability to run and exercise was my fault. In the Marine Corps strength and fitness are all that matters and I lost both. Not until years later did I realize it was the sun and lupus that drained me physically.
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I'm truly in awe of your honesty. It means so much to me as someone who suffers from Lupus. People just don't understand how even something like getting up from bed is draining. How you can't commit to events because your body might be in pain. It can be so isolating.
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It truly is, for the longest time I didn't like doing things because of my physical limitations. I look perfectly healthy on the outside but that isn't the case on the inside. I've become numb to the stares when I need to use my cane, scooter or handicap parking.
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The sun! For years I didn't understand why I felt progressively like death when I went out in direct sunlight. Joint/muscle pain got worse, felt like I was walking through mud. Turns out it's a major trigger. (PS: I still have "fibromyalgia")
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I have fibro, arthritis along with some other fun stuff
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