Been a rough week of riding out this Lupus flare.
I have ups & downs.
I was supposed to be in DC on Thursday, meeting w/YOUR members of Congress to #ProtectOurCare
Instead, we were able to do them remotely. Some you've seen, MORE to come!
Thanks for your 
& support!
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It certainly does!
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For me the worst is the sun. If I am in the sun or any uv producing light for more than a couple of mins I'm severely drained of energy for hrs. The pain and other issues suck but essentially being allergic to the sun sucks more for me.
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