Psychological non epileptic seuzures is a terrible name and an even worse acronym. Is functional seizures best- not sure tbh. Tend to use dissociative seizures clinically as find it helps my communication( but possibly just in terms of how i explain disorder)
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I think dissociative almost as good - if that makes sense to patients What clinches functional as best for me is benefit of having consistent terminology for all symptom types (weakness, movement disorders, sensory, cognitive) as often occur same person (at same or diff time)
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Seems like a good idea to move on from “psychogenic nonepileptic”. Functional seizures seems appropriate,
@btolchin has also mentioned “functional attacks.” I’ll leave that distinction to the experts, but either / both would be an improvement over PNES I think! -
The choice between seizure or attack is difficult and divides clinicians Some think seizure leads people to confuse with epilepsy but for me, if it looks like a seizure, then its a seizure....and this gives it the appropriate gravity for such a devastating condition
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Functional Seizures is much more appropriate. Our FND Community prefer it, it removes the stigma and its all in your head reference by removing psychogenic.
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As someone who has epilepsy and FND, all my notes just say non-epileptic seizures for my FND seizures. I have got told though when I was diagnosed they were functional. I just usually say FND its easier.
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We have from the beginning referred to them as functional seizures as more appropriately encompasses all possible eventualities. We only make reference to NEAD given it is still commonly known in the UK, but unhelpful having terminology stating what it isn't (non-epileptic).
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