Emily's Entourage

@EmilysEntourage

Emily’s Entourage is a 501(c)3 that raises funds & awareness to fast track new treatments & a cure for rare nonsense mutations of .

Philadelphia, PA
Vrijeme pridruživanja: srpanj 2011.

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  1. proslijedio/la je Tweet
    30. sij

    "We also believe in the power of the patient community to make change. A lot of what we do is around infusing their voices—bridging the gap between drug developers, researchers, and the patient-family communities."-- of

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  2. 29. sij

    We'll never forget: At 's gram neg resistance symposium, @drpauloff said, “The post antibiotic era looks like the pre-antibiotic era,” & held up th 1925 book Arrowsmith by Sinclair Lewis where phage cured the bubonic plague

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  3. 29. sij

    Kudos for being a powerful advocate & for shining a light on this critical issue. is a societal crisis & we believe the community offers a unique, ideal platform for antimicrobial discovery & development.

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  4. proslijedio/la je Tweet
    28. sij

    Dive headfirst into the trip of a lifetime! Sail the seas of Spain on a luxury yacht, tour of the Vatican or explore the incredible aquatic life in Thailand, while benefitting organizations such as , Harry's Heroes, & more.

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  5. 23. sij

    We support bc we believe in its promise & in memory of our friend Mallory Smith, who told us ab it in yrs before anyone was taking it seriously | Superbug treatment named for the patient who inspired its discovery

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  6. 18. sij

    Particularly alarming for the community, who relies heavily on antibiotics to fight chronic lung infections. We urgently need antimicrobial innovation and development! | W.H.O. Warns That Pipeline for New Antibiotics Is Running Dry

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  7. proslijedio/la je Tweet
    16. sij

    "First and foremost, I believe so deeply that everyone with CF deserves realistic hope for the future and for a deep breath." co-founder shares her hopes for her organization and the community.

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  8. 14. sij

    Thank you for this fantastic Q&A w Emily for your "Rare Leader" series! We're honored to be featured & grateful for the chance to spread awareness of the critical work we do for rare mutations of CF! READ >>

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  9. 11. sij
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  10. 9. sij

    That amazing moment when you get a call from your hero ⁦⁩ ⁦from , the podcast that empowered & invigorated you when you needed it most,⁩ on your bday (thx to ⁦⁩)!!!! What an incredibly special gift!!!! So grateful!

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  11. 9. sij

    UPDATE: We're officially over HALF WAY to reaching our $35,000 goal for our birthday campaign with a total of $18,783 raised on social, EE site, & offline donations combined! It is all because of YOU! 🤩🎉 Let's keep up the momentum!! DONATE $35 >

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  12. 9. sij

    HAPPY BIRTHDAY DEAR EMILY!! It's Jan 9, & we're overjoyed to have reached this milestone of Emily’s 35th year with all of YOU. But, we're still racing for fast breakthroughs & a cure for the final 10%. Please consider giving a gift of >

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  13. proslijedio/la je Tweet
    8. sij

    Very moving ... how Liza as a bought clothes too big ... in the belief/hope that Emily would grow into them. Now Emily is changing how patients can support science.

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  14. 8. sij

    A heartfelt message from Liza honor of our campaign for Emily | “On January 9, 1985, I became a first-time mom to precious Emily Kate. Young, euphoric, and naive, it never occurred to me that babies could be born sick...READ FULL POST>>

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  15. 8. sij

    Continuing EE tradition, we're posting a very special blog post launching our campaign from Emily’s best friend since childhood, Jess Lazarus, who has played an integral role in EE since its inception in 2011! READ MORE >>

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  16. 7. sij

    Starting today and through Emily's birthday on Jan 9, we're closing our annual drive by asking you to consider a donation of $35–one dollar for every year of Emily's life. DONATE HERE >>

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  17. 7. sij

    Thank you for this great article on the finalization of the acquisition of (formerly Talee Bio)! This is a powerful example of EE’s ability to provide funding & bring transformative new treatments to patients quickly >

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  18. 3. sij

    Emily is thrilled to have participated in which explores discovery, research, & innovation in health care, including the barriers faced by non-traditional "doers" such as patients—all led by !! CHECK IT OUT >

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  19. Honoring a year of major triumphs and tough blows, of intense solidarity and devotion, of fortitude, compassion and unwavering focus. You demonstrated what's possible, you showed us the strength of our collective…

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