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Emily's Entourage proslijedio/la je Tweet
"We also believe in the power of the patient community to make change. A lot of what we do is around infusing their voices—bridging the gap between drug developers, researchers, and the patient-family communities."--
@emilykg1 of@EmilysEntourage#CureCF#CFawarenesshttps://twitter.com/GlobalGenes/status/1217606160997548033 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We'll never forget: At
@TheWistar's gram neg resistance symposium, @drpauloff said, “The post antibiotic era looks like the pre-antibiotic era,” & held up th 1925 book Arrowsmith by Sinclair Lewis where phage cured the bubonic plague https://pew.org/30IEIvZ@pewtrusts@G17EsiasonHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Kudos
@G17Esiason for being a powerful advocate &@Pewhealth for shining a light on this critical issue.#Antbioticresistance is a societal crisis & we believe the#cysticfibrosis community offers a unique, ideal platform for antimicrobial discovery & development.#amrhttps://twitter.com/pewhealth/status/1222586209731563521 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Emily's Entourage proslijedio/la je Tweet
Dive headfirst into the trip of a lifetime! Sail the seas of Spain on a luxury yacht, tour of the Vatican or explore the incredible aquatic life in Thailand, while benefitting organizations such as
@CREST_Travel, Harry's Heroes,@EmilysEntourage & more. http://bit.ly/2GxRqV2 pic.twitter.com/xc4W7epcnJ
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We support
#phagetherapy bc we believe in its promise & in memory of our friend Mallory Smith, who told us ab it in yrs before anyone was taking it seriously | Superbug treatment named for the patient who inspired its discovery https://www.statnews.com/2020/01/23/superbug-phage-therapy-named-for-patient-who-inspired-discovery/ …@Salt_In_My_SoulHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Particularly alarming for the
#CysticFibrosis community, who relies heavily on antibiotics to fight chronic lung infections. We urgently need antimicrobial innovation and development! | W.H.O. Warns That Pipeline for New Antibiotics Is Running Dryhttps://nyti.ms/2R1KeGGHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Emily's Entourage proslijedio/la je Tweet
"First and foremost, I believe so deeply that everyone with CF deserves realistic hope for the future and for a deep breath."
@EmilysEntourage co-founder@emilykg1 shares her hopes for her organization and the#cysticfibrosis community.https://globalgenes.org/2020/01/10/rare-leader-emily-kramer-golinkoff-co-founder-emilys-entourage/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@GlobalGenes for this fantastic Q&A w Emily for your "Rare Leader" series! We're honored to be featured & grateful for the chance to spread awareness of the critical work we do for rare mutations of CF! READ >> http://bit.ly/2Rk0cuu#careaboutrare#CFawareness#beatCFHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@G17Esiason for this very important piece.https://twitter.com/G17Esiason/status/1215352685882462211 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
That amazing moment when you get a call from your hero
@guyraz from@HowIBuiltThis, the podcast that empowered & invigorated you when you needed it most, on your bday (thx to @ShapiroIsMyHero)!!!! What an incredibly special gift!!!! So grateful!pic.twitter.com/D9DfJiuHrk
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UPDATE: We're officially over HALF WAY to reaching our $35,000 goal for our
#35for35 birthday campaign with a total of $18,783 raised on social, EE site, & offline donations combined! It is all because of YOU!
Let's keep up the momentum!! DONATE $35 > http://bit.ly/EE-35for35 pic.twitter.com/rXHt2rDjfk
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HAPPY BIRTHDAY DEAR EMILY!! It's Jan 9, & we're overjoyed to have reached this milestone of Emily’s 35th year with all of YOU. But, we're still racing for fast breakthroughs & a cure for the final 10%. Please consider giving a gift of
#35for35 > http://bit.ly/EE-35for35#cureCFpic.twitter.com/nWGAaYYyIl
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Emily's Entourage proslijedio/la je Tweet
Very moving ... how Liza as a
#cfmom bought clothes too big ... in the belief/hope that Emily would grow into them. Now Emily is changing how patients can support science.https://twitter.com/EmilysEntourage/status/1214986941839618049 …
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A heartfelt message from
#CFMom Liza honor of our#35for35 campaign for Emily | “On January 9, 1985, I became a first-time mom to precious Emily Kate. Young, euphoric, and naive, it never occurred to me that babies could be born sick...READ FULL POST>>http://bit.ly/2T4bOV3 pic.twitter.com/b4PpLBJAsE
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Continuing EE tradition, we're posting a very special blog post launching our
#35for35 campaign from Emily’s best friend since childhood, Jess Lazarus, who has played an integral role in EE since its inception in 2011! READ MORE >> http://bit.ly/39OaprS#CureCFpic.twitter.com/kTaaUzs0Se
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Starting today and through Emily's birthday on Jan 9, we're closing our annual drive by asking you to consider a donation of $35–one dollar for every year of Emily's life. DONATE HERE >> http://bit.ly/2QvF7y8
#35for35#cureCF#beatCFpic.twitter.com/USzDoHqtYc
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Thank you
@PHLBizJournal for this great article on the finalization of the acquisition of@spirovant (formerly Talee Bio)! This is a powerful example of EE’s ability to provide funding & bring transformative new treatments to patients quickly > http://bit.ly/37BRGOe#CureCFHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Emily is thrilled to have participated in
#OpeningPathways which explores discovery, research, & innovation in health care, including the barriers faced by non-traditional "doers" such as patients—all led by@danamlewis!! CHECK IT OUT > https://patient.openingpathways.org/#patientadvocacyHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Honoring a year of major triumphs and tough blows, of intense solidarity and devotion, of fortitude, compassion and unwavering focus. You demonstrated what's possible, you showed us the strength of our collective… https://www.instagram.com/p/B6wJlpNgVG8/?igshid=1bk3j9fdk1auj …
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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