EUpALS

@EUpALS

Joined November 2016
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  1. Jan 5

    EUpALS Industry Member reaches important milestone in bringing a potential therapy to European pALS, as it submitted at EMA a Marketing Authorization Application for AMX0035 for treatment of ALS. Read the press release at the EUpALS website

    2 retweets 2 likes
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  2. 23 Dec 2021

    In 2022, EUpALS continues its informative webinars. Next one is planned early February, on Guidelines for Genetic Testing in ALS. The date will follow soon. We wish you all a well deserved winter holiday break. Merry Christmas and a happy New Year! See you all soon in 2022.

    1 retweet 4 likes
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  3. 7 Dec 2021

    Many congratulations to Prof. Adriano Chio (University of Torino, Italy) who today received the Forbes Norris Award 2021. EUpALS is proud to have such a dedicated scientific expert in the field of ALS/MND as a member of its Scientific Expert Board .

    3 retweets 5 likes
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  4. 18 Nov 2021

    In the Activities section of our website you now find a concise report of the EUpALS October 27 webinar, incl. Q&A and the EMA presentation on how patients engage in EMA activities. Stay tuned for future editions of EUpALS webinars!

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  5. 17 Nov 2021

    The EUpALS Newsletter November 2021 is just sent out. Are you not yet on the audience list but like to receive its future editions? Please register at

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  6. 27 Oct 2021

    This morning, EUpALS organised its 4th webinar. Besides updates by , and Effik, presented an overview on how/when patients are involved in their work. We thank all presenters and attendees. Stay tuned for future editions of EUpALS webinars!

    6 retweets 12 likes
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  7. 17 Oct 2021

    BREAKING NEWS: update Biogen SOD1 The results of the phase 3 VALOR study of Tofersen, an antisense drug from Biogen and Ionis for the treatment of SOD1-mutated ALS, are known! You can read a report of the results via this link:

    2 likes
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  8. 12 Oct 2021

    We invite European pALS and/or their caregivers to participate in the online survey that assesses your attitude towards the ALS-FRS-R rating scale. Please visit

    4 retweets 1 like
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  9. 8 Oct 2021

    In our webinar Oct 27, 11-12 CET, EMA presents overview how/when patients are involved in their work. Contact dirk@als.eu for the link. Questions are awaited via your national ALS/MND Association before Oct 18. As much as possible bundled questions will then be asked to EMA.

    4 retweets 7 likes
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  10. Retweeted
    27 Sep 2021

    To deepen our knowledge of the needs of the European community, Head of Global Medical Affairs Dr. Machelle Manuel met with the team to talk through strategies to best serve those affected by ALS. Thanks again for opening your doors to !

    1 reply 9 retweets 26 likes
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  11. Retweeted
    18 Sep 2021

    Fundamental Rights Survey has been extended until 26th September! Don´t miss out in sharing your experience and perspective with us. If you are a person living with ALS/MND or are/were a caregiver, please complete this survey.

    10 retweets 10 likes
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  12. 21 Sep 2021

    Via EUpALS: 5 pALS/cALS from UK, as well as Spain and Italy can participate in project ‘ALS Global Ethnography’, conducted by a market research company on behalf of a biopharma company. Financial compensation can be provided. Interested or more information? Contact dirk@als.eu

    1 retweet 3 likes
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  13. Retweeted
    15 Sep 2021

    We are thrilled to announce our intention to submit an NDA for AMX0035 for the treatment of to the U.S. FDA in the coming months. We will share any additional updates with the community as soon as we can.

    21 replies 84 retweets 362 likes
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  14. 13 Sep 2021

    PHANTASTIC: Driven by EUpALS member Stichting ALS Nederland, the 9th edition of raised no less then 1.186.860 euro to boost research on /. Congratulations to all who climbed the Mont Ventoux!

    1 retweet 3 likes
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  15. Retweeted
    12 Sep 2021

    GEWELDIG: De 9e editie van Tour du ALS heeft een recordopbrengst tijdens de eventdag zelf opgeleverd: €1.186.860. Directeur Stichting ALS Nederland Gorrit Jan Blonk: “Ben zo ongelofelijk trots op dit bedrag. Het onderzoek naar ALS krijgt hiermee een wezenlijke duw in de rug.”

    4 replies 4 retweets 19 likes
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  16. 8 Jul 2021

    The EUpALS Newsletter July 2021 is just sent out. Are you not yet on the audience list but like to receive its future editions? Please register at

    1 like
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  17. Retweeted
    30 Jun 2021

    Attending the annual general meeting on behalf of ALS tutkimuksen tuki.

    1 retweet 8 likes
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  18. 1 Jul 2021

    Yesterday, EUpALS organised its Annual General Meeting 2021 followed by a scientific webinar. We thank all our member / Associations, Industry members, academic partners and attending pALS for their active contributions.

    2 retweets 7 likes
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  19. Retweeted
    21 Jun 2021

    teşhisinden yeni tedavi seçeneklerine uzanan yolculuk nasıl oluyor?

    8 retweets 17 likes
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  20. Retweeted
    21 Jun 2021

    Today 21st June, is each year the International Alliance of ALS/MND Assoc's celebrate 21st June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe

    , , and 7 others
    1 reply 19 retweets 24 likes
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