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Prikvačeni tweet
ATTN: Confirmed Vascular EDSers. Please enroll and help us to make a huge difference for ALL vEDS patients. The more people enrolled, the more knowledge we gain. TY RT https://www.iths.org/participate/vascular-ehlers-danlos-syndrome-veds-research-collaborative-study/ …pic.twitter.com/1DI5Pr5lUB
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
This webinar has now been updated to include women’s health issues in VEDS as well!https://twitter.com/VEDSMovement/status/1223265300537323520 …
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VEDS Movement: next webinar ”Pregnancy and Women’s Health in VEDS (Vascular Ehlers-Danlos Syndrome)” Feb 13th at 6 pm EST. Presented by Melissa Russo, MD, Assistant Professor of Obstetrics and Gynecology at Brown University. Register here: http://bit.ly/38f0x8J
#VascularEDSpic.twitter.com/zW47x4wPYK
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EDS Today proslijedio/la je Tweet
ICYMI: Join us for a webinar on Pregnancy and
#VEDS on February 13, 6 pm EST. This webinar will be presented by Melissa Russo, MD, Brown University. Register here: https://bit.ly/2TVGBnw#VascularEDSpic.twitter.com/dqtHjWHiUd
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
February 13, 2020: Pregnancy and VEDS - Sign up here https://zoom.us/webinar/register/WN_VEQGvribRpW07s4D_I2isw …pic.twitter.com/bjkSXj1e89
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EDS Today proslijedio/la je Tweet
Next Virtual Medical Symposium webinar: Pregnancy and Marfan Syndrome Melissa Russo, MD
@BrownUniversity Register for free: http://bit.ly/31g4N5O pic.twitter.com/K1xlqRMK8O
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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EDS Today proslijedio/la je Tweet
Please help share the TBAD Survey by
@UWVascsurg and@ShereneShalhub in the TBAD Collaborative. https://www.becertain.org/partnerships/tbad-collaborative … 121 patients completed it so far@VascSurgMD@aorticlondon@MarfanFdn@MiikkaVikkula@AorticDissectUS@AorticHope@UppsalaC@vascernpic.twitter.com/wNqz4HQKG7
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EDS Today proslijedio/la je Tweet
Tonight, our
#VEDS Parents virtual support group meets at 8 pm EST! https://bit.ly/38tIwDQ#VascularEDSpic.twitter.com/pPMDjjSp0D
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EDS Today proslijedio/la je Tweet
We are excited to announce an upcoming webinar on Pregnancy and
#VEDS on February 13 at 6 pm EST. This webinar will be presented by Melissa Russo, MD, Assistant Professor of Obstetrics and Gynecology at Brown University. Register here: https://bit.ly/38f0x8J#VascularEDSpic.twitter.com/x1i2LtOg7Y
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Thank you! If you haven’t filled out this survey please click this link: https://redcap.iths.org/surveys/index.php?s=RDFD4R3HL4 …pic.twitter.com/jJHQDGZ14s
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EDS Today proslijedio/la je Tweet
Some individuals with
#VEDS sleep with their eyes open, or partially open. Do you sleep with your eyes open?#VEDSFastFacts#VascularEDShttps://bit.ly/2QAlPHTHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
Our vEDS Collaborative Comparative Effectiveness Clinical Trial Planning Survey is up! If you are in the US & have
#VEDS, please complete this 10-15 min survey to help us design the trial that matters to you. http://is.gd/vedstrial https://redcap.iths.org/surveys/index.php?s=RDFD4R3HL4 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
Tonight at 6 pm EST, join our monthly VEDS Connect support group for individuals impacted by
#VascularEDS. This group is an opportunity for those with#VEDS to meet others affected and talk about the day-to-day challenges we face. Learn more and sign up:https://bit.ly/2FpCkjIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
This week we have two support groups meeting tomorrow (December 18) for the
#VEDS community! Awaiting Diagnosis at 6 pm EST, and our VEDS Parents group at 8 pm EST. Learn more and sign up at https://bit.ly/2EmMktx#VascularEDSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We received this question to ask
#VEDS patients or physicians who have treated those with#VascularEDS (with a blood clot) with a drug called Argatroban? Could you share your experiences, thank you!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
Join us today at 1:00pm EST for our online vEDS Parents support group. If you are a parent living with vascular Ehlers-Danlos syndrome (
#vEDS), or a parent of a child who has vEDS, please do join us for our virtual support group. https://www.ehlers-danlos.com/veds-group-application/ …#vascularEDSpic.twitter.com/GnsFrqNJVr
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EDS Today proslijedio/la je Tweet
https://www.vedscollaborative.org/get-involved We have enrolled 100 participants in the
#vEDS natural history study! This study is crucial to future vEDS research. Let’s keep the momentum going and get 300 people with confirmed vEDS enrolled by April 2020.@EDS_Today@TheEDSociety@VEDSMovementHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
Our Team VEDS at the
@MarfanFdn Walk for Victory in Orlando today!#MyWalkSavesLives#Marfansyndrome#Marfan#VEDS#vascularehlersdanlos#loeysdietz#LDS#rare#aorticdisease#aorticdissection#WalkforVICTORYpic.twitter.com/gcz3tW1kzY
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EDS Today proslijedio/la je Tweet
Only a few days until the webinar by
@ShereneShalhub on the Management of Dissections &Aneurysms in#VEDS, hosted by@marfanfdn. Register for the webinar to watch live on Dec 9, 7 pm Eastern, or to be among the first to receive the recording. http://bit.ly/VEDSWebinar_Dec9 …#VascularEDSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
EDS Today proslijedio/la je Tweet
ICYMI: We launched http://TheVEDSMovemen.org Monday! Just for VEDS! Read about it here: http://bit.ly/Marfan_NewVEDSWebsite …
#VEDS#VascularEDS@MarfanFdnHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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