Emma Reinhold

@DrEReinhold

Clinical Expert on Often irreverent Never disrespectful Views are mine not advice

United Kingdom
rcgp.org.uk/eds
Geregistreerd in oktober 2013
596 foto's en video's Foto's en video's

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  1. Vastgemaakte Tweet
    2 apr. 2017

    I'm thrilled to discover that my letter to is the Editor's choice!

    61 antwoorden 217 retweets 421 vind-ik-leuks
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  2. heeft geretweet
    10 uur geleden

    Ambassador, Hannah Ensor discusses managing hypermobility with knowledge, empowerment and realistic goals.

    8 retweets 14 vind-ik-leuks
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  3. heeft geretweet
    10 uur geleden

    Whether you’re British or American this is a moving important little film about the NHS and ‘s wonderful son Henry. The tragedy of losing family should never be worsened by having to pay for it. We’re all going to get sick eventually.

    2:20
    The UK's National Health Service spared 's family from financial stress while they endured the grief of losing their son. Now, a week before the NHS's 70th anniversary, he encourages fellow Americans to get involved in the fight for Medicare for All:
    Deze collectie tonen
    3 antwoorden 98 retweets 227 vind-ik-leuks
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  4. heeft geretweet
    8 uur geleden

    If you’ve ever diagnosed chronic daily headache, new persistent daily headache, or chronic daily migraine, but you’ve never diagnosed a spontaneous spinal CSF leak, then you need to read this. Lianne’s headache story

    7 retweets 7 vind-ik-leuks
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  5. heeft geretweet
    8 uur geleden

    The magazine 'Fragile Links' is now out! It includes us putting our hEDS together to help childbearing women via research. Sign up & support to read more.

    , , en 7 anderen
    6 retweets 8 vind-ik-leuks
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  6. heeft geretweet
    16 uur geleden

    GP continuity of care linked with lower death rate, study shows #

    1 antwoord 3 retweets 4 vind-ik-leuks
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  7. heeft geretweet
    14 uur geleden

    It would be wonderful to have more teachers with disabilities in schools , as they would have a better understanding of pupils with disabilities, especially invisible conditions.

    Any other wanna join in?
    1 antwoord 1 retweet 9 vind-ik-leuks
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  8. heeft geretweet
    16 uur geleden

    “You look fine” “It’s the same for everyone” “But, you haven’t done anything” I could go on, apparently the pain is making me mardy this morning

    Since we launched the toolkit we have been inundated with requests for similar resources to help people explain EDS to friends, family and to employers and colleagues. The misonceptions of EDS and lack of understanding have a huge impact on those living with the condition.
    Deze collectie tonen
    7 retweets 14 vind-ik-leuks
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  9. heeft geretweet
    14 uur geleden

    The reality of living with EDS can often be very different to how it is perceived to the…

    1 antwoord 3 retweets 8 vind-ik-leuks
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  10. heeft geretweet
    13 uur geleden

    text to donate code is: EDS3 to 70500 to donate £3. Please help out guys 👍🏻🦓

    3 retweets 1 vind-ik-leuk
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  11. heeft geretweet
    15 uur geleden
    Als antwoord op en

    The funky thing about our Group is that, because there are a few kids with (my younger son's 1 of them), they're quite clued up on how you can't 'tell' just by looking at somebody; think a lot of adults could do with learning this simple lesson!

    2 retweets 8 vind-ik-leuks
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  12. heeft geretweet
    15 uur geleden

    Great to see this resource coming out

    1 antwoord 1 retweet 6 vind-ik-leuks
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  13. 15 uur geleden

    Any other wanna join in?

    Als antwoord op @DrEReinhold @miss_broadbean en 6 anderen
    What do you think, ? Shall we start a mini-revolution and see where it takes us?!? 😉 (other hashtag suggestions welcome!)
    1 antwoord 2 vind-ik-leuks
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  14. heeft geretweet
    29 jun.

    People with are children, friends, customers, students, employees, volunteers, politicians, parents, lovers, neighbors and colleagues. End the !

    1 antwoord 7 retweets 9 vind-ik-leuks
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  15. heeft geretweet
    16 uur geleden
    Als antwoord op en

    I left teaching & now work for the NHS, however, I’m still struggling to receive support. I have always tried to live my life as actively as possible & self-manage my , but, now that I’m suffering from complications, the lack of understanding has become apparent.

    3 antwoorden 2 retweets 7 vind-ik-leuks
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  16. 17 uur geleden

    Since we launched the toolkit we have been inundated with requests for similar resources to help people explain EDS to friends, family and to employers and colleagues. The misonceptions of EDS and lack of understanding have a huge impact on those living with the condition.
    Deze collectie tonen
    3 retweets 9 vind-ik-leuks
    Ongedaan maken
  17. heeft geretweet
    17 uur geleden

    Tweet, Facebook and Instagram your pictures with , tag and share our text to donate code; EDS3 to 70500 to donate £3. Thank you.

    1 antwoord 3 retweets 1 vind-ik-leuk
    Deze collectie tonen
    Deze collectie tonen
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  18. 17 uur geleden

    Lots of good advice for suffering in the

    What are your top tips for managing symptoms of PoTS and EDS in the heat? 🤔
    2 retweets 9 vind-ik-leuks
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  19. heeft geretweet
    28 jun.

    Very important motion, and the emotional highlight of the meeting. Doctors who are victims of domestic violence/abuse - you will be believed and supported. Now we collect further evidence.

    So incredibly proud to get this heard and voted through the Research will now be carried out into the amount of doctors at risk of domestic violence. Thank you for your incredibly moving testimony and to everyone who supported us up to this point
    Deze collectie tonen
    9 retweets 15 vind-ik-leuks
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  20. heeft geretweet
    28 jun.

    Even people who are diagnosed have difficulty finding knowledgeable physicians to care for them. Quality of life diminishes dramatically with inadequately treated !

    Super Bowl MVP Nick Foles is raising awareness about his wife Tori's diagnosis to . patients currently endure a 4 year average delay. Help us raise awareness with a RT!
    1 antwoord 4 retweets 7 vind-ik-leuks
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  21. 18 uur geleden

    Just saw this. Has anyone looked at in ? in predisposes to then causes leaky gut➡autoimmunity

    Antibiotic distruction of the gut microbiome in infant mice impairs their immune responses Antibiotic use may alter the gut microbiome increasing the likelihood of eg.
    9 antwoorden 7 retweets 26 vind-ik-leuks
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