There are only four neuro centres in the UK that treat my genetic condition - all in England. But the Welsh Assembly won’t fund patients in Wales to visit them.
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So anyone with that rare condition (mostly my family) can’t see a specialist.
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Interested to know if the Scottish government and Stormont won’t pay for neurofibromatosis patients to see specialists in Cambridge, Oxford, Manchester and London.
12:37 PM - 25 Mar 2020
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