Awful, sorry about those side effects.
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Replying to @DawnHFoster @MarineauMary
Do you get psych side effects from keppra? I’m scared of AEDs. They make me insane immediately. Keppra autocorrects to leopard though, which I like.
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Replying to @SaliWho @MarineauMary
No, just initial aggression that wore off. Like how Wikipedia agrees no one knows how it works.pic.twitter.com/aZiQtskpgH
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Replying to @DawnHFoster @MarineauMary
Ha! salt thing is a weird one too! I love salt though. Changing the dose of lamotrigine even in tiny increments makes me suicidal and it hits me so hard that I’m so confused I don’t realise it’s the drug. Manufacturer refuses to add it as a common side effect even though it is.
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Replying to @SaliWho @MarineauMary
Horrific: friends have warned me off it, but my neurologist mentioned it last time, but think I’ll just refuse
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Replying to @DawnHFoster @MarineauMary
Have your neurologists ever warned you about side effects of AEDs? Mine never have. Neither have epilepsy nurses. The suicide rate of people with epilepsy is very high and I think a lot of that is because people aren’t warned about the effects of their meds. Or of seizures.
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Replying to @SaliWho @MarineauMary
He has - when he increased my Keppra dose he was very careful to ask if I'd experienced any side effects, and wanted me to increase it slowly to lower the risk of side effects
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Replying to @DawnHFoster @MarineauMary
That’s good. My neuro’s is terrible. Terrible about LGBT+ stuff, mental health... epilepsy generally. Oh, and women. He thinks I’ll change my mind about wanting kids (I was asking him about valproate) then he thought maybe I don’t want kids because I’m a lesbian, which I’m not.
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Replying to @SaliWho @MarineauMary
Oh wow, sounds terrible. Mine asked if I was thinking of having kids soon, I said no, and only then mentioned valproate. But he asks lots of questions about my life, and thinks deeply about treatment.
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Replying to @DawnHFoster @MarineauMary
Amazing. I don’t think I’ve ever had a consultant like that. My dad talked about consultants like that when he was ill last year but he was paying them so they have to not be terrible.
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I feel very lucky to live in London: the hospital’s a short bus ride away, and one of the only centres that treats schwannomatosis is in the same department.
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Replying to @DawnHFoster
I had to google that. Is that connected to your epilepsy or does it just exacerbate it?
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msdawnfoster@gmail.com Tusk is the best Fleetwood Mac album. Only care about LFC.