Same, also worried because I was told they might try lamotrigine next and friends have said that’s the absolute worst (had horrible side effects with Tegretol and Topamax)
Oh wow, sounds terrible. Mine asked if I was thinking of having kids soon, I said no, and only then mentioned valproate. But he asks lots of questions about my life, and thinks deeply about treatment.
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Amazing. I don’t think I’ve ever had a consultant like that. My dad talked about consultants like that when he was ill last year but he was paying them so they have to not be terrible.
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I feel very lucky to live in London: the hospital’s a short bus ride away, and one of the only centres that treats schwannomatosis is in the same department.
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