Also on clobazam (and Keppra) and it’s great but makes me so wobbly
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Replying to @DawnHFoster
It’s weird stuff because it stays in your system so long for a benzo. Days. I always forget that I definitely shouldn’t re-dose after an hour or so because the full effect is nowhere near there yet. Sometimes I don’t notice the feeling of it until the next day.
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Replying to @SaliWho
Same, also worried because I was told they might try lamotrigine next and friends have said that’s the absolute worst (had horrible side effects with Tegretol and Topamax)
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Replying to @DawnHFoster @SaliWho
Been on both and they didn’t help with my epilepsy and now I am on Zonegran 500mg a day and I am tired all the time and my hair is falling out slowly but it works better than the rest of the meds that I have been on.
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Replying to @MarineauMary @SaliWho
Awful, sorry about those side effects.
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Replying to @DawnHFoster @MarineauMary
Do you get psych side effects from keppra? I’m scared of AEDs. They make me insane immediately. Keppra autocorrects to leopard though, which I like.
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Replying to @SaliWho @MarineauMary
No, just initial aggression that wore off. Like how Wikipedia agrees no one knows how it works.pic.twitter.com/aZiQtskpgH
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Replying to @DawnHFoster @MarineauMary
Ha! salt thing is a weird one too! I love salt though. Changing the dose of lamotrigine even in tiny increments makes me suicidal and it hits me so hard that I’m so confused I don’t realise it’s the drug. Manufacturer refuses to add it as a common side effect even though it is.
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Replying to @SaliWho @MarineauMary
Horrific: friends have warned me off it, but my neurologist mentioned it last time, but think I’ll just refuse
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Replying to @DawnHFoster @MarineauMary
Have your neurologists ever warned you about side effects of AEDs? Mine never have. Neither have epilepsy nurses. The suicide rate of people with epilepsy is very high and I think a lot of that is because people aren’t warned about the effects of their meds. Or of seizures.
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He has - when he increased my Keppra dose he was very careful to ask if I'd experienced any side effects, and wanted me to increase it slowly to lower the risk of side effects
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Replying to @DawnHFoster @MarineauMary
That’s good. My neuro’s is terrible. Terrible about LGBT+ stuff, mental health... epilepsy generally. Oh, and women. He thinks I’ll change my mind about wanting kids (I was asking him about valproate) then he thought maybe I don’t want kids because I’m a lesbian, which I’m not.
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Replying to @SaliWho @MarineauMary
Oh wow, sounds terrible. Mine asked if I was thinking of having kids soon, I said no, and only then mentioned valproate. But he asks lots of questions about my life, and thinks deeply about treatment.
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msdawnfoster@gmail.com Tusk is the best Fleetwood Mac album. Only care about LFC.