Every time I go on a medical support forum looking for advice, I long for a separate internet where people with the ability to use medical terminology can go, and leave the rest who call seizures “brainy wobbles” or their partners “hub hubs” to their twee feral bullshit.
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Replying to @multiplebears
Yeah, there’s such a huge market for a parenting/medical forum where twee and the use of euphemism is banned.
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Replying to @banebutwoke @multiplebears
I really want to write a long piece on Munchausens by Internet at some point: how the psychology of how we interact online affects our own perceptions of health.
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Replying to @DawnHFoster @banebutwoke
And also to write one from the point of doctors - I mentioned once that I didn’t google illnesses “I know I’m not meant to” and my doctor said no, he’d rather patients did, because it helped patients articulate what we felt whereas they rely heavily on certain descriptors
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Replying to @DawnHFoster @banebutwoke
I struggled for ages to describe how I felt just before seizures because describing it felt so stupid, melodramatic and outlandish, then
@lara_eleanor told me what I said “like an impending sense of doom” was exactly what it said in textbooks lmao.1 reply 0 retweets 3 likes -
Dawn can I ask because I 've dealt with an epileptic neighbour recently and it was frigging awful: how long btw that feeling starting & a seizure (sorry if that's the wrong word). do you have time to lie down away from sharp hard stuff?
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Completely depends on the individual, and sorryyou had to deal with it, it’s really scary! Some people get an “aura”, where you get some warnings - so I go and lie down asap and take some benzos. But sometimes it comes out of nowhere, same with me, and all you can do is stay with
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Replying to @DawnHFoster @at_revenge and
them, move furniture away, DON’T put anything in their mouth, and only call an ambulance if it lasts longer than five minutes or they injure themselves. When they’re conscious, just ask them what they need, make them a cup of tea, and stay with them chatting until they’re ok.
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Sometimes you can make yourself safe, sometimes your brain’s an arsehole. I recommend everyone, epileptic or not, to set this up - means if you’re ever unconscious, the ambulance can see your health notes and call your loved ones:https://support.apple.com/en-gb/HT207021
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Thanks x3. She split her head open so was hospitalised, first fit for 20 years, due to depression making her stop her meds. She's fine now again. It would just be lovely to have had her cushioned and safe before it happened. Are you still incarcerated?
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msdawnfoster@gmail.com Tusk is the best Fleetwood Mac album. Only care about LFC.