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Davit proslijedio/la je Tweet
We are hiring! Please share!https://twitter.com/metamedica_be/status/1225372058739257345 …
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Delighted to be invited by
@SnT_uni_lu to give a talk about informed#consent in whole genome sequencing. Looking forward to an intellectually stimulating interaction on Monday, February 3rd!#Genomics#informedconsenthttps://wwwfr.uni.lu/snt/news_events/research_seminar_informed_consent_for_whole_genome_sequencing …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Davit proslijedio/la je Tweet
Our genomes contain some of the most personal and sensitive data about us. Therefore, should be treated in a secure and responsible manner. Join us in celebrating the International
#DataPrivacyDay and help us spread awareness about genome-informed medicine.pic.twitter.com/rFajPsKyPk
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Davit proslijedio/la je Tweet
Excellent topic panel, speakers and moderator
@eduardfosch at#CPDP2020 on AI, healthcare and law. Discussing where use of AI is useful in Finland: hospital logistics, medicine management, rehabilitation and well-being coaching (e.g mental health), care at home.pic.twitter.com/oQ0LTZqmi5
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Davit proslijedio/la je Tweet
“What tradeoffs as a society are we willing to make when deciding on the use of AI in healthcare?” Privacy might be one. Thought-provoking panel at
#CPDP2020 moderated by@eduardfoschpic.twitter.com/wuZ23P6NVm
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Davit proslijedio/la je Tweet
How do you manage
#genomic data responsibly? "As a long-term strategy based on#governance and#oversight made of assurance and advisory (#ELSI board) mechanisms" says@DavitChokoshvil@MyMegenoHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Davit proslijedio/la je Tweet
Uni Luxemburg: Menschliches Erbgut lebenslang verfügbar machen
@Wort_LUhttps://www.wort.lu/de/panorama/uni-luxemburg-menschliches-erbgut-lebenslang-verfuegbar-machen-5e29495bda2cc1784e35492f …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Davit proslijedio/la je Tweet
Right now,
@panelfit is hosting a panel at#cpdp2020 on '#AI and#InformedConsent: The challenges ahead'! Find out more about the@SiennaEthics,@project_sherpa and@panelfit collaboration
https://www.orbit-rri.org/ojs/index.php/orbit/article/view/115 …pic.twitter.com/cCTObwlS8I
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Deborah Mascalzoni at
#CPDP2020: The biggest concern subjects of genomic data have is potential financial harm (e.g. discrimination by insurers). Also, lay persons have unrealistic expectations regarding data security and anonymity.#genomics#datasecuritypic.twitter.com/r7bYFvfpxt
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Stellar panel on
#genomics and data sharing at#CPDP2020, insightful presentations, and great moderation by@HeidiBBentzen.pic.twitter.com/uk10HGhNk6
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Scientific
#research has a "privileged place" in#GDPR, but this doesn't mean that GDPR provides unlimited rights to researchers. Furthermore, research should be construed as an activity performed in genuine public interest and contributes to creating new knowledge.#CPDP2020pic.twitter.com/id8hB8ZIK4
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Only approximately 7-15% of biobanks routinely share data with one another in the research context. Kudos to
@BBMRIERIC for their efforts towards facilitating collaboration among biobanks.#OpenScience at#CPDP2020pic.twitter.com/9Tk21doRFH
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It is encouraging that experts at
#CPDP2020 tend to emphasize the notion of "explainability" of AI algorithms over "transparency". The latter tends to be conceptualized as part of the former, but explainability is broader. Makes the discussion more human-centric, imho.pic.twitter.com/rW1Zcn7RKI
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'Transparency does not always mean comprehensivility' (Sligthly paraphrased quote from
@arionair89 ). So very true in all areas where user information-provision is important, but perhaps particularly true for informed consent in#Genomics.#CPDP2020Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Davit proslijedio/la je Tweet
Individuals highly support sharing data for research purposes. We should empower them by letting them to play a role in controlling sharing their datapic.twitter.com/gu9eM4p57Q
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#CPDP2020 Can icons be used to enhance user understanding of data processing and privacy policies? - Short answer: there is clear promise to icons, but they are also limited in their ability to help abstract complex legal and privacy concepts. Great moderation by@arionair89pic.twitter.com/fjixggVmpV
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Davit proslijedio/la je Tweet
Right to be forgotten when children get age of majority?
#CPDP2020 would/ can data controllers accommodate that?#childdatapic.twitter.com/OkqprY1ZaV
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If Netflix sees that you've been watching an emotional show for too long, should it be able to tell whether you're depressed and suggest you go out? - On private companies' doing research on consumer data
#CPDP2020Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Reunion with
@Mahsashabani at#CPDP2020. Looking forward to the three intensive days of insightful presentations and panel discussions!pic.twitter.com/hpWNyqLEuP
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Davit proslijedio/la je Tweet
Our new partnership with
@SnT_uni_lu aims to develop user-centered, transparent and secure genome data services for sequenced individuals and their families. More details about the collaboration:https://wwwen.uni.lu/snt/news_events/megeno_and_university_partner_to_develop_eu_wide_genome_data_services …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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