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https://www.usatoday.com/story/news/humankind/2019/08/28/children-rare-kif-1-a-disease-meet-first-time/2132174001/ … We're so happy to be a part of bringing families together & hopefully a cure
#KIF1A#TogetherWeStand#ResearchMattersHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Are you, or someone you know affected with CDKL5 or Dup 15q? We may be able to help! We're conducting an oral medication study that could help decrease the # of seizures in those affected with
#CDKL5 or#Dup15q. Please contact us at 212-305-5508 for more information.pic.twitter.com/dpGulOMbsF
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Our very own Dr. Wendy Chung will be receiving the 2019 NORD Rare Impact Award this Saturday!
#theDISCOVERProgram#diagnosticodyssey#TREATMENTProgram#clinicaltrials#RareImpact#NORDHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you to all who came out for our VHL Family Conference on Saturday April 27! We will be sharing the recorded materials with you within the next several weeks.
#VHL#VonHippelLindauSyndrome#educationispowerpic.twitter.com/gFZzltRMzA
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Dr. Chung studies more diseases than most geneticists, including rare disorders that cause neurodevelopmental disorders, autism, birth defects, heart and lung conditions, cancer, obesity and diabetes. Learn more here https://bit.ly/2NxJLsq
#RareDiseaseDayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Columbia’s DISCOVER and TREATMENT Programs are the foundation of a new clinical research center dedicated to diagnosing, studying, and developing treatments for rare pediatric genetic diseases.
#RareDiseaseDayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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DISCOVER Program proslijedio/la je Tweet
We want every rare disease patient & family member to have the opportunity to join us and learn about this program. If a member of your rare community needs help covering cost of tickets, please email: impact@kif1a.org for admission.
@GlobalGenes@RareDiseases@DISCOVERprgmhttps://twitter.com/KidsAtColumbia/status/1027575869508919297 …
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to find support for children and families struggling with chronic and terminal illnesses, check outhttps://teensgiv.org/
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DISCOVER Program proslijedio/la je Tweet
A sneak peek inside the upcoming newsletter, including a research update, Q&A with the amazing
@liaamboyle, and a few superheroes spotted about town@DISCOVERprgm@AmyDMarcus#CareAboutRare http://nebula.wsimg.com/5cc54e1a3cb3143e1c46210542ca16d9?AccessKeyId=94C14745E826EA9DD8AF&disposition=0&alloworigin=1 …pic.twitter.com/HPAunCPQLz
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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shout out to our families affected with HNRNPH2 mutationhttps://yellowbrickroadproject.org/
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if you or your family members are affected with a rare undiagnosed condition, we can help! call us at 212-342-4622
#WeUncoverAtDISCOVER#RareDiseaseDayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
DISCOVER Program proslijedio/la je Tweet
On this
#RareDiseaseDay, we're featuring a fundraising campaign for@KIF1A, whose mission is to fund research leading to a cure for KIF1A, an extremely rare degenerative neurological disease. Help them reach their fundraising goal and#ShowYourRare https://hubs.ly/H0b79WY0 pic.twitter.com/T3NuyykoDq
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DISCOVER Program proslijedio/la je Tweet
TODAY is Rare Disease Day! How will you
#ShowYourRare today in solidarity with rare disease patients all over the world? Get involved: http://rarediseaseday.org#RareDiseaseDaypic.twitter.com/tyUCZSmWxR
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DISCOVER Program proslijedio/la je Tweet
On this
#WomenInScience day we honor the women at Dr. Wendy Chung Laboratory@DISCOVERprgm &@jacksonlab who are working hard to advance KIF1A research. Thanks for being the superheroes to our superhero kids!#CureKIF1A#CareAboutRarepic.twitter.com/uK0v73pQAx
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Life after early intervention presentation on Feb 13 at 6:30PM
#medicalresourcespic.twitter.com/oVjzt3CTFy
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DISCOVER Program proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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DISCOVER Program proslijedio/la je Tweet
Take a ride during
#RAREcarousel this World RARE Disease Day as@GlobalGenes &@Kids_Charity host the RARE Carousel of Possible Dreams! Join other#raredisease foundations as they ride to raise awareness and funds. https://globalgenes.org/rarecarousel/#WRDD2018pic.twitter.com/TYk0Uz0fLx
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