DISCOVER Program

@DISCOVERprgm

Connecting families affected by undiagnosed diseases to resources and updates

Vrijeme pridruživanja: kolovoz 2017.

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  1. 28. kol 2019.
    Poništi
  2. 5. srp 2019.

    Are you, or someone you know affected with CDKL5 or Dup 15q? We may be able to help! We're conducting an oral medication study that could help decrease the # of seizures in those affected with or . Please contact us at 212-305-5508 for more information.

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  3. 17. lip 2019.

    Our very own Dr. Wendy Chung will be receiving the 2019 NORD Rare Impact Award this Saturday!

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  4. 29. tra 2019.

    Thank you to all who came out for our VHL Family Conference on Saturday April 27! We will be sharing the recorded materials with you within the next several weeks.

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  5. 28. velj 2019.

    Dr. Chung studies more diseases than most geneticists, including rare disorders that cause neurodevelopmental disorders, autism, birth defects, heart and lung conditions, cancer, obesity and diabetes. Learn more here

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  6. 28. velj 2019.

    Columbia’s DISCOVER and TREATMENT Programs are the foundation of a new clinical research center dedicated to diagnosing, studying, and developing treatments for rare pediatric genetic diseases.

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  7. 28. velj 2019.
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  8. proslijedio/la je Tweet
    9. kol 2018.

    We want every rare disease patient & family member to have the opportunity to join us and learn about this program. If a member of your rare community needs help covering cost of tickets, please email: impact@kif1a.org for admission.

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  9. 20. lip 2018.

    to find support for children and families struggling with chronic and terminal illnesses, check out

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    19. tra 2018.

    A sneak peek inside the upcoming newsletter, including a research update, Q&A with the amazing , and a few superheroes spotted about town

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  11. 16. svi 2018.
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  12. 27. ožu 2018.
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  13. 13. ožu 2018.

    shout out to our families affected with HNRNPH2 mutation

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  14. 28. velj 2018.

    if you or your family members are affected with a rare undiagnosed condition, we can help! call us at 212-342-4622

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    28. velj 2018.

    On this , we're featuring a fundraising campaign for , whose mission is to fund research leading to a cure for KIF1A, an extremely rare degenerative neurological disease. Help them reach their fundraising goal and

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    28. velj 2018.

    TODAY is Rare Disease Day! How will you today in solidarity with rare disease patients all over the world? Get involved:

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  17. proslijedio/la je Tweet
    11. velj 2018.

    On this day we honor the women at Dr. Wendy Chung Laboratory & who are working hard to advance KIF1A research. Thanks for being the superheroes to our superhero kids!

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  18. 24. sij 2018.

    Life after early intervention presentation on Feb 13 at 6:30PM

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    11. sij 2018.
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    11. sij 2018.

    Take a ride during this World RARE Disease Day as & host the RARE Carousel of Possible Dreams! Join other foundations as they ride to raise awareness and funds.

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