FA Research Alliance

@CureFA_org

FARA's mission is to marshal and focus the resources and relationships needed to treat & cure Friedreich's ataxia (FA).

Downingtown, PA
Vrijeme pridruživanja: lipanj 2011.

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  1. ✨ Meet Elisabetta (Liz) Soragni 🙋‍♀️  in the first interview. Liz shares her journey in FA research, how she got her start in FA and now her new position at FARA 🔬. Follow the link to read more 👉 .

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  2. 3. velj

    💌 Happy February! 💌 There are SO many exciting and fun events going on this month  🙌. Check out one of the local events in your neighborhood 👀. Tag and share your pics 📸 via social media with us using the #️⃣ and

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    28. sij

    You can make a difference in a child's life by asking to keep the wheels moving on newborn screening. Join in asking that the federal advisory committee resume work.

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  4. 28. sij

    ✨ Sponsor Spotlight ✨ We are grateful to who has been serving the ride since 2010 in SoCal ☺️. Thank you for your long standing commitment to curing FA 🙌. We look forward to the delicious food awaiting us at rideATAXIA SoCal 🙌. See you at the ride❗️

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  5. 27. sij

    ✨ Meet Lily Pierce 🙋‍♀️ in this weekly interview series on the Ambassador Program blog. Lily enjoys exercising 💪, going to church ⛪️, serving the community 🤝, and spending time with her fiancé ❤️. Follow the link to read more 👉

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  6. 24. sij

    🗓 Check out our January 2020 monthly update for the latest in FARA news including research, events, ongoing clinical trials and studies 🙌. Click the link here 👉 .

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  7. 24. sij

    🔬 FARA is supporting a Phase 2/3 clinical trial sponsored by Retrotope. This trial involves the study drug RT001 which may protect against lipid peroxidation, believed to cause disability in many neurodegenerative diseases Please contact Sarah Endemann: sarah@retrotope.com

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    23. sij

    Redefining Innovation in panelists Saba Sile , Jennifer Farmer , Stephanie Fischer , fielding incredible, thought provoking questions from our audience. – mjesto: Pennovation Works

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  9. 21. sij

    📣 Join our first Teen Hangout of the new year! This month will be led by Madelyn Frederick 🤗. Teen Hangouts are a great way for teenagers with ataxia to connect and share their experiences 🙌. This month’s topic is “Do you have pets?” 🐶. 👉 .

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  10. 20. sij

    ✨ Meet Hasitha Illa 🙋‍♀️ in this weekly interview series on the Ambassador Program blog. Hasitha enjoys writing 📝, listening to music 🎶, and spending time with her friends and family ❤️. Follow the link to read more 👉

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    19. sij

    Brigid Brennan of the Friedreich's Ataxia Research Alliance discusses research about Friedreich’s ataxia. Voices of Friedreich's ataxia Friedreich's Ataxia Support Group

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  12. 17. sij

    🗣 The FARA Ambassador Program will host the first FA Hangout of the new year on ‘Getting Involved with FA Research’ 🔬. Want to get more involved? Want to host a fundraiser or stay up-to-date with current research? Let’s talk about it! 👉

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    15. sij

    Brigid Brennan of the Friedreich's Ataxia Research Alliance discusses Friedreich’s ataxia , a degenerative neuro-muscular disorder.

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  14. 15. sij

    🎊 Cheers to the new year! When you stop by your local of Beer now through March 31st, they will donate $1 to the Friedreich’s Ataxia Research Alliance (FARA) for the sale of every Guinness, at participating locations! 🙌 Click here 👉

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  15. 14. sij

    🔬 FARA’s Chief Executive Officer, Jen Farmer will speak on a panel titled the ‘Redefining Innovation in Rare Disease Drug Development’, hosted by 1776 & on January 22nd at 5:30pm. Click the link to learn more and to RSVP 👉 .

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  16. 13. sij

    ✨ Meet Rishipal Singh Hura 🙋‍♂️ in this weekly interview series on the Ambassador Program blog. Rishipal enjoys exercise/stretching 💪, enjoying good food 🍽, and spending time with his family ❤️. Follow the link to read more 👉

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    9. sij

    Exciting news! We're patterning with on a course for their ambassadors.

    Salem Oaks and FARA logos over an ampersand
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  18. proslijedio/la je Tweet
    9. sij

    So lucky to be a Ambassador with this great learning opportunity from

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  19. proslijedio/la je Tweet
    11. sij

    Thank you to our great community and all the volunteers that helped makes this event possible.

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  20. proslijedio/la je Tweet
    10. sij

    We are very excited to work with the Friedreich's Ataxia Research Alliance (FARA) Ambassadors in the coming months to help them become even stronger partners in .

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