The Crohn's & Colitis Foundation contributed to the reporting for this article about Christopher McNaughton, a UC patient who fought back against his insurance company when he was notified that his insurer was not going to cover his medication. bit.ly/3wR2jvh
Follow
Crohn's & Colitis Foundation
@CrohnsColitisFn
Our Mission: To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
Crohn's & Colitis Foundation’s Tweets
Our new recipe finder tool, Gut-Friendly Recipes, features 500+ recipes to help reduce stress around meal choices for people with IBD and other conditions, and for people interested in nutritious cooking! See the strawberry banana sorbet recipe here: bit.ly/40kHR3d
2
18
The Foundation is dedicated to supporting the career development of women leaders. Learn more about our Women in IBD Leadership Program here: crohnscolitisfoundation.org/science-and-pr
#NationalWomenPhysiciansDay
2
Registration is now open for Camp Oasis, our summer camp exclusive to kids and teens with IBD! Join us in person at one of our 11 camp locations across the country, or virtually through CampOasis@Home. Learn more and register here: crohnscolitisfoundation.org/get-involved/c
3
(2/2) Have you been required by insurance to try and fail on a medication before getitng coverage for your original provider-prescribed treatment? If so, you've been subjected to step therapy. Our Advocacy team is working to reform these laws. Learn more:
7
Show this thread
(1/2) In a Post perspective piece, Y. Johnson tells a story that is all too familiar for patients with Crohn's disease or ulcerative colitis: jumping through hoops due to step therapy laws. Read the full piece here:
1
5
18
Show this thread
(2/2) Are you interested in learning more about information shared at the Crohn's & Colitis Congress®️? Be sure to join us for IBD Insider: Patient Updates from the Crohn’s & Colitis Congress®️ on Thursday, Feb. 9 at 7 p.m. ET.
1
2
Show this thread
(1/2) Our Executive Vice President of Education, Support, & Advocacy Laura Wingate spoke with HCPLive about key takeaways from #CCCongress23. See her video interview here:
1
6
Show this thread
Throughout #BlackHistoryMonth in February, we are celebrating and sharing the stories of Black members of the #IBD community. Are you interested in sharing your story this month? Please email socialmedia@crohnscolitisfoundation.org to get started.
7
16
Have you checked out our new recipe finder tool, Gut Friendly Recipes, powered by ? Learn more about this exciting new resource for IBD patients here: bit.ly/3wKv50v
4
5
Learn why pro chef, entrepreneur, and ulcerative colitis patient is partnering with the Foundation on Gut Friendly Recipes. See what this new recipe finder tool has to offer, and get inspired to start cooking! Learn more here: bit.ly/40kHR3d
1:51
336 views
3
16
Join us on Feb. 9 at IBD Insider: Patient Updates from the Crohn's & Colitis Congress®️! This exclusive symposium will share the highlights from #CCCongress23 with IBD patients and caregivers. Register here: bit.ly/3Ws55RZ
3
14
See how IBD Quorus®️, our flagship quality of care initiative, has evolved into a nationwide collaboration of IBD healthcare providers tracking care delivery performance to foster the exchange of ideas and improve patient outcomes: bit.ly/3Hff3QV
1
4
Have you registered yet? Don't miss out on the newly reimagined Take Steps experience. Click here to find a walk near you! bit.ly/3WwIW4Q
3
5
A pediatric #UlcerativeColitis research study is now enrolling children or teens who are not responding to their current medications. Learn more: crohnscolitisfoundation.org/a-study-of-ved #sponsored #PediatricUC #ClinicalResearch #UC
4
2
#NYC has the necessary infrastructure to solve the public restroom shortage & it's critical that legislators and businesses join forces to improve restroom access, esp. for those with urgent medical needs. Learn more about the #OpenRestroomsMovement: crohnscolitisfoundation.org/openrestrooms
Quote Tweet
I wrote to @nytimes to reiterate that restroom access is not an issue of convenience, but a necessity for millions of chronic disease patients with urgent restroom needs, in response to this @nytopinion from @got2gonyc: nyti.ms/3R2JUER
8
18
Today's the day! Registration is NOW OPEN for the new Take Steps experience coming to a city near you! Don't miss out — learn more and register here: bit.ly/3WwIW4Q 💙 💚 👣
0:30
647 views
1
1
12
PredictImmune is actively recruiting #CrohnsDisease and #UlcerativeColitis patients between 16 and 80 years old for their PRECIOUS observational research study. Click here to learn more bit.ly/3QZVOiP . #clinicalresearch #sponsored
2
8
16
Tomorrow is the day! Whether you're a patient, caregiver, or supporter, together we will celebrate and honor your unique journey at a Take Steps event near you. Registration opens TOMORROW!
1
There is potential for a socioeconomic divide if underinsured or uninsured patients are limited w/ their HCP visits in favor of cheaper AI while insured patients have full access to their HCP. #CCCongress23
5
11
“AI won’t replace clinicians, but clinicians who use AI will replace those who do not.” - #CCCongress23
9
22
AI can be helpful amid a growing global IBD population, as time savings can reduce wait times and improve access to care. #CCCongress23
9
11
AI has the potential to be used for interpreting:
- endoscopic scoring
- laboratory data
- medication history
- hospitalizations
- patient-reported outcomes
#CCCongress23
6
10
Time-saving AI doing endoscopic scoring could help reduce clinician burnout. #CCCongress23
3
7
There may be a future where GIs have an AI assistant, but “we need to make sure this assistant is a companion, not a competitor,” says . #CCCongress23
1
3
17
AI can be implemented to help support GIs in making integrated clinical decisions, says . #CCCongress23
3
5
Images of common extraintestinal manifestations of #IBD in patients of color are often missing from dermatology literature, says . #CCCongress23
4
19
Underinsured people had a nearly 4 times longer delay in receiving an IBD diagnosis than those who were insured. #CCCongress23
1
13
28
Upstream barriers (housing, transportation, healthcare & medication access) ➡️ downstream disparities (disease severity, complications, medication adherence). #CCCongress23
4
13
Higher quality research is needed on the race-based disparities in IBD so that we not only understand differences between white patients and patients of color, but why these differences exist, says . #CCCongress23
5
18
Prevalence of IBD seems to increase as immigrants move from an area of low prevalence to high prevalence. #CCCongress23
4
9
Black/ African American patients are less likely to seek care from GIs & IBD specialists, and more likely to:
- report concerns about cost of care
- avoid visits due transportation issues
- delay medical visits due to costs
#CCCongress23
3
9
Challenges in studying incidence/prevalence of IBD by race & ethnicity in the U.S.:
- Are data from a single center or health system representative?
-Is hospitalization/discharge data representative?
- Administrative claims data often don’t contain race/ethnicity #CCCongress23
3
6
Globally, there is a rapid rise in diagnoses of #CrohnsDisease and #UlcerativeColitis. #CCCongress23
10
15
Traumatic responses in medicine:
- anger, depression, or anxiety
- lack of trust in medical providers
- missed appointments
- unread/ignored messages
- reluctance or unwillingness to follow treatment recommendations
#CCCongress23
7
21
Sources of trauma in IBD:
- uncontrolled or prolonged pain
- repeated uncomfortable or painful procedures
- hospitalizations
- surgeries
- highly negative interactions with care providers
- exposure of intimate parts of the body to strangers
#CCCongress23
1
18
62
One way to help #IBD patients cultivate a positive relationship with food? HCPs should start by asking patients about their safe foods first rather than trigger foods, says . #CCCongress23.
8
22