Thyroid trouble has struck a sweet and essential #ServiceDog ~ please help if you can! pocketfulofhope.wixsite.com/pathwaysofheal
Crip Creek
@CreekFeet
ME-disabled solo mom and caregiver of Severe ME daughter Hazel at helpforhazel.com
Crip Creek’s Tweets
How to Spend Twenty Seconds
#COVID19
give thanks for soap and water
think of those who have none
think of ways to get them some
wave goodbye to the dying
recite a really short poem
or sing “Happy Birthday” twice.
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Although we're in pandemic Oz and today marks 13 years of her illness--half her life--Hazel has made progress, and you can help! Hooray for angels & heroes & docs.
helpforhazel.com/2020/05/05/ang #MEcfs #neuroME #COVID19 #chronicillness
Problems Persist. Progress Possible. Pennies or pounds appreciated.
A new edition of the ME Global Chronicle is now availabe online! To download the newest edition, follow this link: bit.ly/37AqHCD
This publication highlights all ME/CFS-related news from the past few months, ranging from research summaries to political developments.
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#2019in5words Climate. Climate. Climate. Climate. Climate.
Loretta Lynch is riveting. Thank you, Climate One. Loretta, any chance you'll run for office? Pick an office, any office. You've got my vote.
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"A giant fire, a flood...we are starting to see more and more evidence that our 20th century infrastructure is just not made for the 21st century weather," says @russellgold.
This week's podcast out now: spoti.fi/2KqLKAH
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Every issue is a climate crisis issue. #DemDebate
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There's been zero oversight of US health agencies for 20 years. No one has a clue what's actually going on at CDC/NIH. Journalists read press releases + assume they're true. No one is haunting the corridors of these agencies, interviewing administrators/scientists. Journalism RIP
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Denying choice stops abortion just like Prohibition stopped consumption of alcohol. #AbortionIsAWomansRight
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Would be nice if healthy allies would take more steps to help #MillionsMissing
Kind words are nice, but not enough!
What #PwME need is
💰 funding
🔬 research
🏡 supportive services (eg, house calls)
👩🏾⚕️ better medical education👨🏻⚕️
& more! (I'm sure I'm forgetting something)
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Imagine there was an illness very similar to MS, but more disabling, much more common, struck kids way more often and sometimes lead to death. Many epidemics all over the world. The most common treatments recommended not helpful, but dangerous. Welcome to #mecfs. #MillionsMissing
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What a great idea! 😍
For #PwME at home and/or in bed 🛏 - if you can manage a video call then check out this option for connecting with others all around the world 🌍
#MillionsMissing
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Join other #pwME on the #MillionsMissing global virtual call! bluejeans.com/751251143
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"Whitney lies motionless on a simple bed, his head shaved and his frame emaciated. He's fed by a tube directly into his stomach. His lips haven't uttered a word in five years."
He pioneered technology that fueled the Human Genome Project. Now his... cnn.it/2WJT3pb
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#MillionsMissing #MECFS Image: empty hiking shoes, laces tied thru tags: Name: Kathleen; Location: Northern Cal; Age: 59; Years Sick: 12. I Miss: Hiking, dancing, swimming, creek walks, but most I miss being there 4 my kids' triumphs & troubles. Another Mother's Day. 12 May 2019.
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Shoes... I hope yours are out there acting up, even if you can't be. Mine only made it as far as the porch. #MillionsMissing #MECFS #Spoonies #MyalgicEncephalomyelitis #May12th
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Missing Mother's Day
#MillionsMissing
#mecfs
12 years sick along with my 25-year-old daughter.
gofundme.com/help-for-hazel
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Mother's Day memories are bittersweet when #MEcfs has stolen the ability to celebrate. Please help heal Hazel. gofundme.com/help-for-hazel
💔 Paris
💔🌍
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Parisians sing as their beautiful cathedral tragically burns. What an awful day for the City of Lights #NotreDame twitter.com/Inaki_Gil/stat
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Suggestion for reconstruction: preserve art and ruins, lovingly, then spend on care of refugees, poor and homeless in Paris and worldwide, in the name of #NotreDame
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#NotreDame mille câlins à Paris
The Heresy Machine turns computer coding into choreography. A queer cybernetic romance between Alan Turing and his computer creation exposes the nature of love and mortality. Take it to the Fringe! facebook.com/donate/8955667
What if you never knew when you'd get paid or how much? And prices varied wildly from day to day? And you were often robbed? Every cent you spent would be a gamble. You’d never know if you had enough for the next thing. Think “energy” instead of “money,” and that’s life with ME.
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A question the 25% severely ill have to face before they get old. A question the other 75% of Meeps have to ask far before the age well people will find themselves in assisted living. A question that explains a lot of suicides.
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An urgent warning. ME DOES get worse as you age. Scientists are not looking for the pathogen + unlikely to get "there" in time to help b'cause NIH controlling research. No urgency, political agenda. Who will take care of aging PWME who cannot afford assisted living? Where to go?
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No wall. No compromise. Shutdown? State of Emergency? What about treason? Corruption? Let's talk impeachment already. Keep the conversation focused on the reality. #FakeTrumpEmergency
Looking for healing in the L.A. area or remote? "I feel much, much better..." testimonial for
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It is a relief to know when someone has felt deep relief after a session. Very happy to get this Voice Mail...
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When it comes to burning candles at both ends, there’s no wick for the rested.
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#WorldAIDSDay Solidarity with our fellow NeuroImmune disease from #MEcfs sufferers still fighting for effective treatment. gofundme.com/help-for-hazel Please help her survive!
For #GivingTuesday please consider helping Hazel with her high health care costs. Let's get her a life. gofundme.com/help-for-hazel
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Hazel's lucky to be seeing a doc from a top ME clinic but she'll need lots of help to pay for this care. Please help make her holiday hopeful. gofundme.com/help-for-hazel
Please Rt and share this link to help Hazel. She's a U.S. #spoonie with no health care at all. healhazel.blogspot.com/2018/09/creeks
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