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Blokirali ste korisnika/cu @CraigReagan2

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  1. proslijedio/la je Tweet
    30. sij

    There is not an FDA bureaucrat alive who could live with themselves the next day if they spent one hour with this man. THIS MUST STOP

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  2. proslijedio/la je Tweet
    4. velj
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  3. proslijedio/la je Tweet
    4. velj

    The President can, should, and MUST do an Executive Order for ALS. On 7/10/19 it was ESRD, now it's ALS' turn!

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  4. proslijedio/la je Tweet
    22. sij
    Odgovor korisniku/ci

    first time you guys have even mentioned Nurown as a promising treatment. Now it’s time for the leading ALS organization to start advocating for the dying patients that you represent. A treatment that works! Let’s fight for it! Saying there is nothing you can do is unacceptable.

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  5. proslijedio/la je Tweet
    31. sij
    Odgovor korisnicima

    Thakur also mentioned that people “got better” during a televised interview but his decisions, along with others at , have repeatedly shown that they will not advocate for it. Thus, they no longer represent the community.

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  6. proslijedio/la je Tweet
    31. sij
    Odgovor korisniku/ci

    Tens of 1000s with continue to die due to the decade long approval process preventing access to treatment, proven to be safe and with UNPRECEDENTED results in multiple patients. CAN HAPPEN TO ANYONE. Will you allow more to die ?

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  7. proslijedio/la je Tweet
    12. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    Thank you so much for your support. Your retweeting may not seem like much, but to those of us battling ALS, trying to get the FDA to hear our pleas for , your exposure means more hope. The underdogs shall prevail

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  8. proslijedio/la je Tweet
    12. sij

    Thank you so much to for her continued support, personally and of the entire ALS community. Awarenesses is a crucial element in our fight. She, and her many followers, represent conquering over adversity...that is our goal. Glad to have them in our fight.

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  9. proslijedio/la je Tweet
    3. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    here we go again, same pleas, new commissioner. What is wrong with the morality of the leadership of the Do something, please

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  10. 2. sij

    Boris%20Johnson%3A%20Accelerated%20Access%20Review%20for%20Motor%20Neuron%20Disease%20(MND)%20treatments%20in%20the%20United%20Kingdom.%20-%20%23NurOwn%20%23BMMSCs%20-%20Sign%20the%20Petition! http%3A%2F%%2F4cKm6Ghm via

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  11. proslijedio/la je Tweet
    25. pro 2019.
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  12. proslijedio/la je Tweet
    27. pro 2019.
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  13. proslijedio/la je Tweet
    27. pro 2019.

    We just want a chance, some hope. from terminal to treatable.

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  14. proslijedio/la je Tweet
    27. pro 2019.

    It's one thing to have a terminal disease with no treatments, it's a very different story when a safe and effective treatment sit stuck in the

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  15. proslijedio/la je Tweet
    28. pro 2019.

    1869- 1st identified 1939- Lou Gehrig diagnosed 2019-ZERO effective FDA approved treatments Change the course of ALS. Approve NOW!

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  16. proslijedio/la je Tweet
    25. pro 2019.

    IMO not permitting Bobby Forster & others access to after the PH2 CT was criminal. did not advocate for him & was/is stuck in bureaucracy.

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  17. proslijedio/la je Tweet
    27. pro 2019.
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  18. proslijedio/la je Tweet

    Listen up you have no idea what pALS & cALS face daily. Currently my family is abroad for treatment due to lack of treatment access in the US. Folks like you add fuel to fires 🔥 you know nothing about. Do our community a favor and sit with your thoughts 💭

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  19. proslijedio/la je Tweet
    22. pro 2019.
    Odgovor korisnicima

    If I were King, I would take ALL of ALSA’s $, tell ALL of them to get the F*ck out & get real jobs,& distribute the $ as fairly as humanly possible. Healey would be in the mix. My fear is ALSA exploiting & profiting from IBC2. I will NEVER let ALSA forget they have pALS $.

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  20. proslijedio/la je Tweet
    22. pro 2019.
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